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应对癌症:审视萨斯卡通癌症中心为妇科癌症女性患者提供的支持。

Coping with cancer: examining the supports available to women with gynecologic cancer at Saskatoon Cancer Center.

作者信息

Smith Sarah N, Chizen Donna, Agrawal Anita

机构信息

*College of Medicine, University of Saskatchewan; and †Department of Obstetrics, Gynecology, and Reproductive Sciences, University of Saskatchewan, Royal University Hospital, Saskatoon, Saskatchewan, Canada.

出版信息

Int J Gynecol Cancer. 2015 Jan;25(1):174-9. doi: 10.1097/IGC.0000000000000322.

DOI:10.1097/IGC.0000000000000322
PMID:25398019
Abstract

OBJECTIVE

When women are diagnosed and treated for gynecologic cancer, they must find ways to cope. Cancer is both a physically and emotionally challenging disease. This study aims to identify existing coping strategies in women diagnosed with gynecologic cancer throughout their cancer journey and to add to these supports to help women cope with their cancer.

METHODS

Women with gynecologic cancer were interviewed individually according to focus group principles during scheduled clinic visits at Saskatoon Cancer Center to identify coping strategies following diagnosis and treatment of cancer. Interviews were used to inform researchers before preparing a survey about coping with cancer. During 8 weeks, women receiving care were surveyed. Questions explored diagnosis, therapy phase, feelings, attitudes, and support.

RESULTS

Sixteen women were interviewed; questionnaires were distributed to 75 women with cervical (20.7%), uterine (22.2%), ovarian (60.3%), and vulvar cancer (1.6%). After diagnosis, the major support was family in 96.8%, and talking helped in 71.4%. All women found their gynecologic oncologist and nurse were easy to talk to/supportive. Only 12.7% attended counseling, 17.5% attended workshops/patient education sessions, and 9.5% attended support groups. Reasons for not receiving supportive counseling were voiced. A small number of alternative therapies tried by 60.3% were deemed helpful in 97.4%. Parking at the cancer center was a stressor in 81%. Participants felt that the Saskatoon gynecologic cancer care team fulfilled their needs emotionally. Patients want information about workshops, support meetings, and other modalities to improve their quality of life during their cancer journey.

CONCLUSION

Providing better quality and type of available supports may enhance the experience of women following diagnosis and during therapy for cancer and will help women to cope with cancer more effectively.

摘要

目的

当女性被诊断出患有妇科癌症并接受治疗时,她们必须找到应对的方法。癌症是一种在身体和情感上都具有挑战性的疾病。本研究旨在确定被诊断患有妇科癌症的女性在其整个癌症治疗过程中现有的应对策略,并增加这些支持措施,以帮助女性应对癌症。

方法

在萨斯卡通癌症中心的定期门诊就诊期间,根据焦点小组原则对患有妇科癌症的女性进行了单独访谈,以确定癌症诊断和治疗后的应对策略。在准备关于应对癌症的调查之前,访谈为研究人员提供了信息。在8周内,对接受治疗的女性进行了调查。问题涉及诊断、治疗阶段、感受、态度和支持。

结果

对16名女性进行了访谈;向75名患有宫颈癌(20.7%)、子宫癌(22.2%)、卵巢癌(60.3%)和外阴癌(1.6%)的女性发放了问卷。诊断后,96.8%的主要支持来自家人,71.4%的人认为交谈有帮助。所有女性都觉得她们的妇科肿瘤医生和护士很容易交谈/提供支持。只有12.7%的人参加了咨询,17.5%的人参加了工作坊/患者教育课程,9.5%的人参加了支持小组。提出了未接受支持性咨询的原因。60.3%的人尝试了少量替代疗法,其中97.4%的人认为有帮助。81%的人认为癌症中心的停车是一个压力源。参与者认为萨斯卡通妇科癌症护理团队在情感上满足了他们的需求。患者希望了解工作坊、支持会议和其他方式的信息,以改善他们在癌症治疗过程中的生活质量。

结论

提供质量更高、类型更合适的现有支持措施,可能会改善女性在癌症诊断和治疗期间的体验,并将帮助女性更有效地应对癌症。

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