Delaine M, Ohl J
Service de gynécologie-obstétrique, hôpital de Hautepierre, 1, avenue Molière, 67100 Strasbourg, France.
Service de gynécologie-obstétrique, CMCO, 19, rue Louis-Pasteur, 67300 Schiltigheim, France.
Gynecol Obstet Fertil. 2014 Dec;42(12):865-71. doi: 10.1016/j.gyobfe.2014.10.009. Epub 2014 Nov 14.
This study evaluated the sexual activity and the quality of life in patients with a Mayer-Rokitansky-Kuster-Hauser (MRKH) syndrome.
The study is based on a series of patients hospitalized for the treatment of MRKH syndrome in CMCO between 1997 and 2010. Through the medical reports, we recovered information about the pathology, the treatment given and the psychological support proposed to or wished by the patients. The patients also had to answer a questionnary concerning the quality of the informations they received about the treatment, the different types of supports proposed and wanted, their life as a couple and how they communicated about their disease.
Eleven medical reports have been reviewed. The patients were aged 21 in average at the moment of the treatment. Three patients had some associated malformations. Different methods of treatment were represented (Frank's method, Vecchietti's technique, sigmoid vaginoplasty, McIndoe's technique). Sexual intercourse was assessed as satisfactory by 4 patients. In 8 cases, the partner accepted well the pathology. Only 4 out of the eleven medical reports mentioned a psychological support. Nine out of the eleven patients accepted to answer the questionnary.
The review of the literature and our own results show that the patients with MRKH syndrome have a real need for psychological support. They are able to have sexual intercourse that is satisfactory in the domains of excitation, lubrification and desire, especially after treatment. The main problem is the inability to bear children, a problem which might by solved by the future researches about uterus graft and the evolution of the laws concerning gestational surrogacy.
本研究评估了迈耶-罗基坦斯基-库斯特-豪泽综合征(MRKH综合征)患者的性活动及生活质量。
该研究基于1997年至2010年间在CMCO因MRKH综合征住院治疗的一系列患者。通过医疗报告,我们获取了有关病理、所给予的治疗以及患者所接受或希望得到的心理支持的信息。患者还必须回答一份问卷,内容涉及他们所获得的关于治疗的信息质量、所提供和希望得到的不同类型的支持、他们的夫妻生活以及他们如何就自己的疾病进行沟通。
共审查了11份医疗报告。治疗时患者的平均年龄为21岁。3例患者伴有一些相关畸形。呈现了不同的治疗方法(弗兰克法、韦基耶蒂技术、乙状结肠阴道成形术、麦金杜技术)。4例患者认为性交令人满意。8例中,伴侣对病情接受良好。11份医疗报告中只有4份提到了心理支持。11名患者中有9名同意回答问卷。
文献回顾及我们自己的结果表明,MRKH综合征患者确实需要心理支持。他们能够进行在兴奋、润滑和欲望方面令人满意的性交,尤其是在治疗后。主要问题是无法生育,这个问题可能会通过未来关于子宫移植的研究以及有关代孕的法律演变来解决。