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Linking Broad Consent to Biobank Governance: Support From a Deliberative Public Engagement in California.

作者信息

Garrett Sarah B, Dohan Daniel, Koenig Barbara A

机构信息

a University of California , San Francisco.

出版信息

Am J Bioeth. 2015;15(9):56-7. doi: 10.1080/15265161.2015.1062177.

Abstract
摘要

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本文引用的文献

1
Effectiveness of public deliberation methods for gathering input on issues in healthcare: Results from a randomized trial.
Soc Sci Med. 2015 May;133:11-20. doi: 10.1016/j.socscimed.2015.03.024. Epub 2015 Mar 14.
2
EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California.
Clin Transl Sci. 2015 Aug;8(4):362-6. doi: 10.1111/cts.12259. Epub 2015 Jan 10.
3
Community engagement for big epidemiology: deliberative democracy as a tool.
J Pers Med. 2014 Nov 20;4(4):459-74. doi: 10.3390/jpm4040459.
4
The Mayo Clinic Biobank: a building block for individualized medicine.
Mayo Clin Proc. 2013 Sep;88(9):952-62. doi: 10.1016/j.mayocp.2013.06.006.
5
From consent to institutions: designing adaptive governance for genomic biobanks.
Soc Sci Med. 2011 Aug;73(3):367-74. doi: 10.1016/j.socscimed.2011.05.046. Epub 2011 Jul 2.

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