Russell Steve, Zalwango Flavia, Namukwaya Stella, Katongole Joseph, Muhumuza Richard, Nalugya Ruth, Seeley Janet
School of International Development, University of East Anglia, Norwich, Norfolk.
Medical Research Council, Uganda Virus Research Institute, Uganda Research Unit on AIDS, Uganda.
Sociol Health Illn. 2016 Jan;38(1):58-72. doi: 10.1111/1467-9566.12341. Epub 2015 Sep 18.
Antiretroviral therapy (ART) has the potential to change processes of HIV stigmatisation. In this article, changing processes of stigmatisation among a group of people living with HIV (PLWH) on ART in Wakiso District, Uganda, are analysed using qualitative data from a study of PLWH's self-management of HIV on ART. There were 38 respondents (20 women, 18 men) who had been taking ART for at least 1 year. They were purposefully selected from government and non-government ART providers. Two in-depth interviews were held with each participant. Processes of reduced self-stigmatisation were clearly evident, caused by the recovery of their physical appearance and support from health workers. However most participants continued to conceal their status because they anticipated stigma; for example, they feared gossip, rejection and their status being used against them. Anticipated stigma was gendered: women expressed greater fear of enacted forms of stigma such as rejection by their partner; in contrast men's fears focused on gossip, loss of dignity and self-stigmatisation. The evidence indicates that ART has not reduced underlying structural drivers of stigmatisation, notably gender identities and inequalities, and that interventions are still required to mitigate and tackle stigmatisation, such as counselling, peer-led education and support groups that can help PLWH reconstruct alternative and more positive identities. A video abstract of this article can be found at: https://youtu.be/WtIaZJQ3Y_8.
抗逆转录病毒疗法(ART)有可能改变对艾滋病的污名化进程。在本文中,利用一项关于乌干达瓦基索区接受抗逆转录病毒治疗的艾滋病毒感染者(PLWH)自我管理艾滋病毒的研究中的定性数据,分析了一组接受抗逆转录病毒治疗的艾滋病毒感染者中污名化进程的变化情况。共有38名受访者(20名女性,18名男性),他们接受抗逆转录病毒治疗至少已有1年。他们是从政府和非政府抗逆转录病毒治疗服务提供者中特意挑选出来的。对每位参与者进行了两次深入访谈。自我污名化减轻的过程明显可见,这是由于他们外貌的恢复以及医护人员的支持。然而,大多数参与者仍继续隐瞒自己的病情,因为他们预料到会受到污名化;例如,他们担心流言蜚语、被拒绝以及自己的病情被人利用来对付他们。预期的污名化存在性别差异:女性更担心遭受诸如被伴侣拒绝等实际形式的污名化;相比之下,男性的担忧则集中在流言蜚语、尊严丧失和自我污名化上。证据表明,抗逆转录病毒疗法并未减少污名化的潜在结构性驱动因素,尤其是性别认同和不平等现象,仍然需要采取干预措施来减轻和应对污名化,比如提供咨询、同伴主导的教育以及支持小组,这些措施可以帮助艾滋病毒感染者重建其他更积极的身份认同。本文的视频摘要可在以下网址查看:https://youtu.be/WtIaZJQ3Y_8 。
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