Princewill Chitu Womehoma, Jegede Ayodele S, Nordström Karin, Lanre-Abass Bolatito, Elger Bernice Simone
Dev World Bioeth. 2017 Apr;17(1):40-49. doi: 10.1111/dewb.12112. Epub 2016 Feb 12.
Research is a global enterprise requiring participation of both genders for generalizable knowledge; advancement of science and evidence based medical treatment. Participation of women in research is necessary to reduce the current bias that most empirical evidence is obtained from studies with men to inform health care and related policy interventions. Various factors are assumed to limit autonomy amongst the Yoruba women of western Nigeria. This paper seeks to explore the experience and understanding of autonomy by the Yoruba women in relation to research participation. Focus is on factors that affect women's autonomous decision making in research participation. An exploratory qualitative approach comprising four focus group discussions, 42 in-depth interviews and 14 key informant interviews was used. The study permits a significant amount of triangulation, as opinions of husbands and religious leaders are also explored. Interviews and discussions were audiotaped and transcribed verbatim. Content analysis was employed for data analysis. Findings show that concepts of autonomy varied amongst the Yoruba women. Patriarchy, religion and culture are conceived to have negative impact on the autonomy of women in respect to research participation. Among the important findings are: 1) male dominance is strongly emphasized by religious leaders who should teach equality, 2) while men feel that by making decisions for women, they are protecting them, the women on the other hand see this protection as a way of limiting their autonomy. We recommend further studies to develop culturally appropriate and workable recruitment methods to increase women's participation in research.
研究是一项全球性事业,需要男女共同参与以获取具有普遍适用性的知识,推动科学发展和循证医学治疗。女性参与研究对于减少当前的偏见至关重要,因为大多数实证证据都来自以男性为研究对象的研究,而这些证据用于为医疗保健及相关政策干预提供信息。人们认为多种因素限制了尼日利亚西部约鲁巴族女性的自主权。本文旨在探讨约鲁巴族女性在参与研究方面对自主权的体验和理解。重点关注影响女性在参与研究时自主决策的因素。研究采用了探索性定性研究方法,包括四次焦点小组讨论、42次深入访谈和14次关键 informant 访谈。该研究允许进行大量的三角验证,因为还探讨了丈夫和宗教领袖的意见。访谈和讨论进行了录音并逐字转录。采用内容分析法进行数据分析。研究结果表明,约鲁巴族女性对自主权的概念各不相同。父权制、宗教和文化被认为会对女性参与研究的自主权产生负面影响。重要研究结果包括:1)本应宣扬平等的宗教领袖强烈强调男性主导地位;2)虽然男性认为为女性做决定是在保护她们,但女性却将这种保护视为限制她们自主权的一种方式。我们建议开展进一步研究,以制定符合文化背景且可行的招募方法,增加女性参与研究的比例。