Commissariat Persis V, Kenowitz Joslyn R, Trast Jeniece, Heptulla Rubina A, Gonzalez Jeffrey S
Joslin Diabetes Center, Boston, Massachusetts, USA.
Yeshiva University, Bronx, New York, USA.
Qual Health Res. 2016 Apr;26(5):672-84. doi: 10.1177/1049732316628835. Epub 2016 Feb 17.
This study explored the incorporation of type 1 diabetes mellitus (T1DM) into self-identity among adolescents. Guided interviews explored 40 adolescents' views of T1DM in relation to their sense of self and relationships with others. Responses were analyzed using thematic analysis. Results revealed that the entire sample described T1DM as a significant burden; many described how T1DM made them feel less "normal." Adolescents described both positive and negative aspects of self-management in social relationships, though most reported benefits in sharing T1DM with friends. Females were more likely to share information about T1DM and to describe positive changes in self-perception as a result of T1DM. The psychosocial processes related to integration of T1DM into self-identity described in these qualitative data provide hypothesis-generating findings that can guide future quantitative research examining incorporation of T1DM into adolescent self-identity in relation to measures of self-esteem, peer orientation, self-management, and glycemic control.
本研究探讨了青少年1型糖尿病(T1DM)融入自我认同的情况。引导式访谈探究了40名青少年对T1DM的看法,以及T1DM与他们自我意识和人际关系的关联。采用主题分析法对回答进行分析。结果显示,整个样本都将T1DM描述为一项重大负担;许多人描述了T1DM如何让他们感觉不那么“正常”。青少年描述了社交关系中自我管理的积极和消极方面,不过大多数人报告说与朋友分享T1DM有好处。女性更有可能分享有关T1DM的信息,并描述T1DM导致的自我认知方面的积极变化。这些定性数据中描述的与将T1DM融入自我认同相关的心理社会过程提供了有助于生成假设的研究结果,可指导未来的定量研究,该研究将考察T1DM与青少年自尊、同伴取向、自我管理和血糖控制指标相关的自我认同融入情况。