Thompson David R, Ski Chantal F, Garside Joanne, Astin Felicity
Centre for the Heart and Mind, Australian Catholic University, Melbourne, Australia Department of Psychiatry, University of Melbourne, Melbourne, Australia Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Australia
Centre for the Heart and Mind, Australian Catholic University, Melbourne, Australia Department of Psychiatry, University of Melbourne, Melbourne, Australia.
Eur J Cardiovasc Nurs. 2016 Apr;15(2):114-25. doi: 10.1177/1474515116637980.
The traditional use of physically focused outcome measures fails to capture holistic, quality of life issues of importance to patients. The relatively recent, rapidly growing interest in patient-reported outcome measures (PROMs) attests to this and clinicians are faced with difficult decisions regarding their choice and use.
The purpose of this review was to identify and synthesise the literature pertaining to the concept of quality of life and the main PROMs used to measure this in the cardiovascular field.
A review of the recent literature was undertaken on commonly used cardiovascular health-related quality of life (HRQoL) PROMs.
Two types of HRQoL PROMs are available: disease-specific and generic. Both have limitations, and in many instances there is merit in using a combination, depending on the medical condition and treatment. In addition to psychometric considerations such as reliability, validity and responsiveness, the choice of a PROM will depend on factors such as the patient/investigator burden its use may impose, resources, costs, intellectual property and copyright issues. A new 'hybrid' HRQoL PROM for use in patients across the main cardiovascular disease presentations - angina, myocardial infarction and heart failure - appears to show promise.
Cardiovascular HRQoL PROMs have a wide variety of uses and can help clinicians, researchers, managers and policy makers in decision making and provide indicators of clinical and institutional quality and outcomes. New HRQoL PROMs are emerging and their choice and use should be determined by a host of issues, including psychometric properties, acceptability, feasibility and cost.
传统上使用侧重于身体状况的结果指标无法全面反映对患者至关重要的生活质量问题。最近对患者报告结果指标（PROMs）的兴趣迅速增长就证明了这一点，临床医生在其选择和使用方面面临艰难决策。
本综述的目的是识别并综合与生活质量概念以及心血管领域用于衡量生活质量的主要患者报告结果指标相关的文献。
对常用的心血管健康相关生活质量（HRQoL）患者报告结果指标的近期文献进行了综述。
有两种类型的HRQoL患者报告结果指标：疾病特异性指标和通用指标。两者都有局限性，在许多情况下，根据病情和治疗方法，联合使用可能更有价值。除了诸如可靠性、有效性和反应性等心理测量学方面的考虑因素外，患者报告结果指标的选择还将取决于其使用可能带来的患者/研究者负担、资源、成本、知识产权和版权问题等因素。一种用于主要心血管疾病表现（心绞痛、心肌梗死和心力衰竭）患者的新型“混合”HRQoL患者报告结果指标似乎很有前景。
心血管HRQoL患者报告结果指标有多种用途，可帮助临床医生、研究人员、管理人员和政策制定者进行决策，并提供临床和机构质量及结果的指标。新的HRQoL患者报告结果指标不断涌现，其选择和使用应取决于一系列问题，包括心理测量学特性、可接受性、可行性和成本。
