Haynes Sarah, Kim Katherine K
University of California Davis, Betty Irene Moore School of Nursing.
Stud Health Technol Inform. 2016;225:505-9.
There is global concern about healthcare cost, quality, and access as the prevalence of complex and chronic diseases, such as heart disease, continues to grow. Care for patients with complex chronic disease involves diverse practitioners and multiple transitions between medical centers, physician practices, clinics, community resources, and patient homes. There are few systems that provide the flexibility to manage these varied and complex interactions. Participatory and user-centered design methodology was applied to the first stage of building a mobile platform for care coordination for complex, chronic heart disease. Key informant interviews with patients, caregivers, clinicians, and care coordinators were conducted. Thematic analysis led to identification of priority user functions including shared care plan, medication management, symptom management, nutrition, physical activity, appointments, personal monitoring devices, and integration of data and workflow. Meaningful stakeholder engagement contributes to a person-centered system that enhances health and efficiency.
随着心脏病等复杂和慢性疾病的患病率持续上升，全球对医疗保健成本、质量和可及性都极为关注。照顾患有复杂慢性病的患者需要涉及不同的从业者，并且在医疗中心、医生诊所、社区诊所、社区资源和患者家庭之间进行多次转诊。很少有系统能够灵活地管理这些多样且复杂的互动。参与式和以用户为中心的设计方法被应用于构建一个针对复杂慢性心脏病护理协调的移动平台的第一阶段。对患者、护理人员、临床医生和护理协调员进行了关键信息提供者访谈。主题分析确定了优先用户功能，包括共享护理计划、药物管理、症状管理、营养、身体活动、预约、个人监测设备以及数据和工作流程的整合。有意义的利益相关者参与有助于建立一个以患者为中心的系统，从而提高健康水平和效率。
