Scime Natalie V, Bartlett Doreen J, Brunton Laura K, Palisano Robert J
a Faculty of Health Sciences , Western University , London , Ontario , Canada.
b CanChild Centre for Childhood Disability Research , McMaster University , Hamilton , Ontario , Canada.
Phys Occup Ther Pediatr. 2017 Aug;37(3):252-267. doi: 10.1080/01942638.2016.1185505. Epub 2016 Jul 1.
This study investigated the experiences and perceptions of parents of children with cerebral palsy (CP) when classifying their children using the Gross Motor Function Classification System (GMFCS), the Manual Ability Classification System (MACS), and the Communication Function Classification System (CFCS). The second aim was to collate parents' recommendations for service providers on how to interact and communicate with families.
A purposive sample of seven parents participating in the On Track study was recruited. Semi-structured interviews were conducted orally and were audiotaped, transcribed, and coded openly. A descriptive interpretive approach within a pragmatic perspective was used during analysis.
Seven themes encompassing parents' experiences and perspectives reflect a process of increased understanding when classifying their children, with perceptions of utility evident throughout this process. Six recommendations for service providers emerged, including making the child a priority and being a dependable resource.
Knowledge of parents' experiences when using the GMFCS, MACS, and CFCS can provide useful insight for service providers collaborating with parents to classify function in children with CP. Using the recommendations from these parents can facilitate family-provider collaboration for goal setting and intervention planning.
本研究调查了脑瘫（CP）患儿家长在使用粗大运动功能分类系统（GMFCS）、手动能力分类系统（MACS）和沟通功能分类系统（CFCS）对其子女进行分类时的经历和看法。第二个目的是整理家长对服务提供者就如何与家庭互动和沟通提出的建议。
招募了参与“步入正轨”研究的7名家长作为有目的的样本。进行了半结构化口头访谈，并进行了录音、转录和公开编码。分析过程中采用了实用主义视角下的描述性解释方法。
涵盖家长经历和观点的七个主题反映了在对子女进行分类时认识不断加深的过程，在此过程中实用性的认识显而易见。出现了针对服务提供者的六项建议，包括将儿童放在首位并成为可靠的资源。
了解家长在使用GMFCS、MACS和CFCS时的经历，可为与家长合作对CP患儿功能进行分类的服务提供者提供有用的见解。采用这些家长提出的建议可促进家庭与提供者在目标设定和干预计划方面的合作。
