Blankart Carl Rudolf, Milstein Ricarda, Rybczynski Meike, Schüler Helke, von Kodolitsch Yskert
a Hamburg Center for Health Economics , Universität Hamburg , Hamburg , Germany.
b University Heart Center Hamburg , University Hospital Eppendorf , Hamburg , Germany.
Expert Rev Pharmacoecon Outcomes Res. 2016 Oct;16(5):591-598. doi: 10.1080/14737167.2016.1240619. Epub 2016 Oct 6.
Marfan syndrome is a rare multisystem disease of the connective tissue, which affects multiple organ systems. advances in healthcare have doubled the life-expectancy of patients over the past three decades. to date, there is no comprehensive review that consolidates economic considerations and care for marfan patients. Areas covered: Present research suggests that there may be a link between treatment pattern, disease progression and economic costs of Marfan syndrome. It indicates that an early detection of the disease and preventive interventions achieve a dual aim. From a patient perspective, it may reduce the amount of emergency surgery or intervention, and inpatient stays. In addition, it slows disease progression, lowers lifestyle restrictions, reduces psychological stress, and improves health-related quality of life. Expert commentary: Early detection and preventive measures are likely to achieve a dual aim by simultaneously containing costs and reducing the number and length of inpatient stays.
马凡综合征是一种罕见的结缔组织多系统疾病,会影响多个器官系统。在过去三十年中,医疗保健的进步使患者的预期寿命翻了一番。迄今为止,尚无综合综述整合马凡综合征患者的经济考量与护理情况。涵盖领域:目前的研究表明,马凡综合征的治疗模式、疾病进展与经济成本之间可能存在关联。这表明疾病的早期检测和预防性干预可实现双重目标。从患者角度来看,这可能会减少急诊手术或干预的次数以及住院时间。此外,它还能减缓疾病进展,降低生活方式限制,减轻心理压力,并改善与健康相关的生活质量。专家评论:早期检测和预防措施可能通过同时控制成本以及减少住院次数和住院时间来实现双重目标。