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追求更健康的生活:对风湿性疾病患者康复目标的质性内容分析

Aiming for a healthier life: a qualitative content analysis of rehabilitation goals in patients with rheumatic diseases.

作者信息

Berdal Gunnhild, Sand-Svartrud Anne-Lene, Bø Ingvild, Dager Turid N, Dingsør Anne, Eppeland Siv G, Hagfors Jon, Hamnes Bente, Nielsen Merete, Slungaard Bente, Wigers Sigrid H, Hagen Kåre Birger, Dagfinrud Hanne S, Kjeken Ingvild

机构信息

a Department of Rheumatology, Norwegian National Advisory Unit on Rehabilitation in Rheumatology , Diakonhjemmet Hospital , Oslo , Norway.

b Department of Rheumatology, Norwegian National Unit for Rehabilitation for Rheumatic Patients , Diakonhjemmet Hospital , Oslo , Norway.

出版信息

Disabil Rehabil. 2018 Apr;40(7):765-778. doi: 10.1080/09638288.2016.1275043. Epub 2017 Jan 13.

DOI:10.1080/09638288.2016.1275043
PMID:28084842
Abstract

PURPOSE

To explore and describe rehabilitation goals of patients with rheumatic diseases during rehabilitation stays, and examine whether goal content changed from admission to discharge.

METHOD

Fifty-two participants were recruited from six rehabilitation centers in Norway. Goals were formulated by the participants during semi-structured goal-setting conversations with health professionals trained in motivational interviewing. An inductive qualitative content analysis was conducted to classify and quantify the expressed goals. Changes in goal content from admission to discharge were calculated as percentage differences. Goal content was explored across demographic and contextual characteristics.

RESULTS

A total of 779 rehabilitation goals were classified into 35 categories, within nine overarching dimensions. These goals varied and covered a wide range of topics. Most common at admission were goals concerning healthy lifestyle, followed by goals concerning symptoms, managing everyday life, adaptation, disease management, social life, and knowledge. At discharge, goals about knowledge and symptoms decreased considerably, and goals about healthy lifestyle and adaptation increased. The health profession involved and patient gender influenced goal content.

CONCLUSIONS

The rehabilitation goals of the patients with rheumatic diseases were found to be wide-ranging, with healthy lifestyle as the most prominent focus. Goal content changed between admission to, and discharge from, rehabilitation stays. Implications for rehabilitation Rehabilitation goals set by patients with rheumatic diseases most frequently concern healthy lifestyle changes, yet span a wide range of topics. Patient goals vary by gender and are influenced by the profession of the health care worker involved in the goal-setting process. To meet the diversity of patient needs, health professionals need to be aware of their potential influence on the actual goal-setting task, which may limit the range of topics patients present when they are asked to set rehabilitation goals. The proposed framework for classifying goal content has the capacity to detect changes in goals occurring during the rehabilitation process, and may be used as a clinical tool during goal-setting conversations for this patient group.

摘要

目的

探讨并描述风湿性疾病患者在康复住院期间的康复目标,并检查目标内容从入院到出院是否发生变化。

方法

从挪威的六个康复中心招募了52名参与者。目标由参与者在与接受过动机性访谈培训的卫生专业人员进行的半结构化目标设定对话中制定。进行归纳性定性内容分析以对所表达的目标进行分类和量化。计算从入院到出院目标内容的变化作为百分比差异。在人口统计学和背景特征中探索目标内容。

结果

总共779个康复目标被分为35类,涵盖九个总体维度。这些目标各不相同,涵盖广泛的主题。入院时最常见的目标是关于健康生活方式的目标,其次是关于症状、日常生活管理、适应、疾病管理、社交生活和知识的目标。出院时,关于知识和症状的目标大幅减少,关于健康生活方式和适应的目标增加。所涉及的卫生专业和患者性别影响目标内容。

结论

发现风湿性疾病患者的康复目标范围广泛,以健康生活方式为最突出的重点。康复住院期间从入院到出院目标内容发生了变化。对康复的启示 风湿性疾病患者设定的康复目标最常涉及健康生活方式的改变,但涵盖广泛的主题。患者目标因性别而异,并受到参与目标设定过程的医护人员职业的影响。为了满足患者需求的多样性,卫生专业人员需要意识到他们对实际目标设定任务的潜在影响,这可能会限制患者在被要求设定康复目标时提出的主题范围。所提出的目标内容分类框架有能力检测康复过程中发生的目标变化,并可在为该患者群体进行目标设定对话时用作临床工具。

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