Oddleifson D August, Sawicki Gregory S
a Department of Anthropology , Dartmouth College , Hanover , NH , USA.
b Division of Pulmonary and Respiratory Diseases, Boston Children's Hospital , Harvard Medical School , Boston , MA , USA.
Anthropol Med. 2017 Apr;24(1):65-80. doi: 10.1080/13648470.2017.1278865. Epub 2017 Mar 2.
Adherence to prescribed treatment is a pressing issue for adolescents and young adults with cystic fibrosis (CF). This paper presents two narratives from the thematic analysis of unstructured interviews with 14 adolescents, young adults, and older adults living with CF. Through a new identity-based framework termed recursive perception that draws focus on how an individual perceives how others view them, it explores the social context of adherence and self-care among young adults with CF. It demonstrates that an individual's understanding of self and desire to maintain a certain image for peers can be deeply embedded in adherence and self-care patterns, leading individuals to feel they need to choose between tending to their health needs and living their lives. This suggests that current biomedical innovation in CF care must be complemented with renewed efforts to find effective means to empower young adults with CF to successfully navigate the social challenges of their illness and avoid the pitfalls of nonadherence that can lead to a permanent worsening of their health condition.
对于患有囊性纤维化（CF）的青少年和年轻人来说，坚持规定的治疗是一个紧迫的问题。本文展示了对14名患有CF的青少年、年轻人和老年人进行非结构化访谈的主题分析中的两个叙述。通过一个名为递归感知的基于新身份的框架，该框架关注个体如何感知他人对自己的看法，探讨了CF年轻患者坚持治疗和自我护理的社会背景。研究表明，个体对自我的理解以及为同龄人维持某种形象的愿望可能深深植根于坚持治疗和自我护理模式中，导致个体感觉他们需要在照顾自身健康需求和过自己的生活之间做出选择。这表明，当前CF护理领域的生物医学创新必须辅以新的努力，以找到有效的方法，使患有CF的年轻人能够成功应对疾病带来的社会挑战，并避免不坚持治疗可能导致健康状况永久性恶化的陷阱。
