Gray Tamryn F
Johns Hopkins University.
Clin J Oncol Nurs. 2017 Apr 1;21(2):263. doi: 10.1188/17.CJON.263.
"What would you do?" I have heard this question numerous times throughout my nursing career by patients and families affected by cancer. As a pediatric blood and marrow transplantation nurse, I have often seen patients and their families wrestle with difficult treatment decisions. I have witnessed parents struggle between beginning end-of-life care for their child, or pursuing a risky but potentially life-saving clinical trial. With science driving advances in cancer treatments and patients playing more active roles in their care, uncertainty around cancer treatment decisions will only become more complicated. For me, being a good nurse meant helping these patients navigate this uncertainty. I was compelled to pursue research to understand the process patients experience as they make treatment decisions, who they choose to involve in decision making, and what role the unique nurse- patient relationship could play in facilitating patient-centered decisions. .
“你会怎么做？”在我的护理生涯中，我无数次听到受癌症影响的患者和家属问这个问题。作为一名儿科血液和骨髓移植护士，我经常看到患者及其家属在艰难的治疗决策中挣扎。我目睹过父母在为孩子开始临终护理，还是参与一项有风险但可能挽救生命的临床试验之间苦苦挣扎。随着科学推动癌症治疗的进步，以及患者在自身护理中发挥更积极的作用，癌症治疗决策的不确定性只会变得更加复杂。对我来说，成为一名优秀的护士意味着帮助这些患者应对这种不确定性。我不得不进行研究，以了解患者在做出治疗决策时所经历的过程、他们选择谁参与决策，以及独特的护患关系在促进以患者为中心的决策中可以发挥什么作用。
