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一项旨在探索多发性硬化症患者对使用智能手机技术进行医疗保健目的的看法的问卷调查研究。

A questionnaire study to explore the views of people with multiple sclerosis of using smartphone technology for health care purposes.

机构信息

a Department of Physiotherapy , King's College Hospital NHS Foundation Trust , London , United Kingdom.

b Department of Health Service Executive Community Physiotherapy , Kildare/West Wicklow , Naas , Ireland.

出版信息

Disabil Rehabil. 2018 Jun;40(12):1434-1442. doi: 10.1080/09638288.2017.1300332. Epub 2017 Mar 21.

Abstract

PURPOSE

Delivering interventions over the lifetime of people with chronic conditions is an international healthcare challenge. The benefits of technology in healthcare have been demonstrated in many health conditions. This study aims to seek the views of People with multiple sclerosis (MS) of the feasibility and perceived acceptability of smartphone use for healthcare purposes.

METHODS

Using SurveyMonkey™, respondents answered 21 items about their smartphone use and acceptance of smartphones in healthcare. Descriptive statistics were used to summarize data from closed questions. Content analysis was used for open questions.

RESULTS

Most of the self-selected 197 respondents were female (138/197;70.1%), aged 42.78 ± 10.29 years, had relapsing-remitting MS (143/187;76.5%), and mobilized without an aid (154/197;78.17%). Most respondents reported having smartphone access (174/191;91.1%) and owning smartphones (167/192;86.97%). Perceived benefits of smartphones included improved healthcare access (119/190;62.63%) and greater independence (124/190;65.26%). The top three concerns included reduced contact with Healthcare Professionals (66/186;35.48%), data security (60/186;32.26%) and visual impairment (47/184;25.54%).

CONCLUSION

These findings suggest that smartphone use is extensive, frequent, and acceptable for healthcare purposes in this self-selected sample. People with MS should be consulted during the design of smartphone-based interventions, as specific concerns were raised. Future studies should explore how this technology may be best used and implemented in practice. Implications for Rehabilitation Smartphones may have the potential to improve the implementation of best practice among people with multiple sclerosis (MS) This study found that smartphone use is widespread among people with MS, the majority of whom would accept using smartphones in healthcare. Some potential issues were raised, and would need to be considered during the development and implementation of smartphone-based interventions. Issues included potential lack of contact with health-care professionals, data security, and visual impairment.

摘要

目的

为慢性病患者提供终生干预是国际医疗保健的挑战。技术在医疗保健中的益处已在许多健康状况中得到证明。本研究旨在征求多发性硬化症(MS)患者对使用智能手机进行医疗保健的可行性和可接受性的意见。

方法

使用 SurveyMonkey™,受访者回答了 21 个关于他们智能手机使用情况和对医疗保健中使用智能手机的接受程度的问题。使用描述性统计数据总结封闭问题的数据。对开放式问题进行内容分析。

结果

在自行选择的 197 名受访者中,大多数为女性(138/197;70.1%),年龄为 42.78±10.29 岁,患有复发缓解型 MS(143/187;76.5%),无需辅助即可活动(154/197;78.17%)。大多数受访者报告说拥有智能手机访问权限(174/191;91.1%)和智能手机(167/192;86.97%)。认为智能手机的好处包括改善医疗保健的可及性(119/190;62.63%)和更大的独立性(124/190;65.26%)。前三大担忧包括与医疗保健专业人员的接触减少(186/66;35.48%),数据安全(186/60;32.26%)和视力障碍(184/47;25.54%)。

结论

这些发现表明,在这个自我选择的样本中,智能手机的使用广泛、频繁且可接受用于医疗保健目的。在设计基于智能手机的干预措施时,应咨询多发性硬化症患者,因为他们提出了具体的担忧。未来的研究应探讨如何在实践中最好地使用和实施这项技术。

对康复的影响

智能手机可能有潜力改善多发性硬化症患者的最佳实践实施情况。本研究发现,智能手机在多发性硬化症患者中广泛使用,其中大多数患者愿意在医疗保健中使用智能手机。提出了一些潜在的问题,在开发和实施基于智能手机的干预措施时需要考虑这些问题。这些问题包括与医疗保健专业人员可能缺乏联系、数据安全和视力障碍。

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