Cooney Caitlin, Hercher Laura, Bajaj Komal
Department of Maternal Fetal Care Center, NYU Langone Medical Center, 150 E 32nd St. Suite 101, New York, NY, 10016, USA.
The Joan H. Marks Graduate Program in Human Genetics, Sarah Lawrence College, Bronxville, NY, USA.
J Genet Couns. 2017 Oct;26(5):1059-1069. doi: 10.1007/s10897-017-0083-x. Epub 2017 Mar 27.
In 2013, twenty-two states enacted seventy provisions restricting access to abortion. The legislation restricted access to abortions by instituting more regulations on providers and facilities, by prohibiting abortion prior to viability, by restricting funding available to patients and by requiring patients to wait a mandatory time period before having a procedure. Genetic counselors are trained to provide unbiased, comprehensive information in a non-directive style in order to allow patients to exercise their reproductive freedom. We developed a survey of 37 questions for genetic counselors to gauge the potential impact these provisions will have on their ability to be a patient advocate. A total of 286 individuals completed the survey; however, not all respondents answered all questions. Qualitative questions complemented quantitative survey entries, allowing respondents to input thoughts and examples. Results indicate genetic counselors in all regions share similar professional opinions about the provisions. More genetic counselors in the South and Midwest noticed changes impacting patients since the provisions have been enacted. These regional differences correlate with the location of states that have seem the greatest increase in antiabortion provisions.
2013年,22个州颁布了70条限制堕胎的条款。这些立法通过对提供者和设施制定更多规定、禁止在胎儿具有生存能力之前堕胎、限制患者可获得的资金以及要求患者在进行手术前等待规定的强制时间等方式来限制堕胎。遗传咨询师接受培训,以非指导性的方式提供客观、全面的信息,以便患者行使其生殖自由。我们为遗传咨询师设计了一项包含37个问题的调查,以评估这些条款对他们成为患者权益倡导者能力的潜在影响。共有286人完成了调查;然而,并非所有受访者都回答了所有问题。定性问题对定量调查条目起到补充作用,使受访者能够输入想法和示例。结果表明,所有地区的遗传咨询师对这些条款都有相似的专业看法。自这些条款颁布以来,南部和中西部地区有更多的遗传咨询师注意到对患者产生影响的变化。这些地区差异与反堕胎条款增加最多的州的地理位置相关。