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患者对环境控制单元的认知:脊髓损伤和疾病退伍军人在退伍军人事务部(VA)接受住院医疗护理的体验

Patient perceptions of environmental control units: experiences of Veterans with spinal cord injuries and disorders receiving inpatient VA healthcare.

作者信息

Etingen Bella, Martinez Rachael N, Vallette Marissa A, Dendinger Ryan, Bidassie Balmatee, Miskevics Scott, Khan Hira T, Cozart Huberta T, Locatelli Sara M, Weaver Frances M

机构信息

a Center of Innovation for Complex Chronic Healthcare (CINCCH) , Health Services Research & Development, Department of Veterans Affairs, Hines VA Hospital , Hines , IL , USA.

b VA-Center for Applied Systems Engineering (VA-CASE) , Clinical Partnerships in Healthcare Transformation (CPHT), Veterans Engineering Resource Center (VERC) , Indianapolis , IN , USA.

出版信息

Disabil Rehabil Assist Technol. 2018 May;13(4):325-332. doi: 10.1080/17483107.2017.1312574. Epub 2017 Apr 19.

Abstract

PURPOSE

To assess patients' perceptions of environmental control units (ECUs) at Veterans Affairs Spinal Cord Injury Centers.

MATERIALS AND METHODS

A brief questionnaire was conducted with patients in real-time while they were hospitalised ("on-the-spot questionnaire"); a survey was mailed to patients who had recently been discharged from a hospital stay ("discharge survey"). Data were analysed using descriptive statistics.

RESULTS

Seventy on-the-spot questionnaires and 80 discharge surveys were collected. ECU features used most frequently were comparable in responses from both surveys: watching TV/movies (81%, 85%), calling the nurse (68%, 61%), turning lights on/off (63%, 52%), adjusting the bed (53%, 33%), and playing games (39%, 24%). Many on-the-spot questionnaire respondents felt the ECU met their need for independence a great deal (42%). Most respondents to both surveys were satisfied with the ECU (71%, 57%). Areas for improvement included user training, improved functionality of the device and its features, and device design.

CONCLUSIONS

ECUs were well-accepted by persons with spinal cord injuries/disorders (SCI/D) in the inpatient setting, and increased patients' perceptions of independence. To maximise usability and satisfaction, facilities should ensure that comprehensive training on ECU use and features available is offered to all patients, and resources are available for timely troubleshooting and maintenance. Implications for rehabilitation An environmental control unit (ECU) is a form of assistive technology that allows individuals with disabilities (such as spinal cord injuries and disorders [SCI/D]) to control functional and entertainment-related aspects of their environment. ECU use can increase functioning, independence and psychosocial well-being among individuals with SCI/D, by allowing users to reclaim control over day-to-day activities that are otherwise limited by their disability. Our study results indicate that, among persons with SCI/D, ECUs are well-accepted and increase perceptions of independence. To maximise usability and patient satisfaction, facilities should ensure that comprehensive training on how to use ECUs and what features are available is offered to all patients, and resources are available for timely troubleshooting and maintenance.

摘要

目的

评估退伍军人事务脊髓损伤中心患者对环境控制单元(ECU)的看法。

材料与方法

在患者住院期间实时进行简短问卷调查(“现场问卷”);向近期出院的患者邮寄调查问卷(“出院调查”)。使用描述性统计方法分析数据。

结果

共收集到70份现场问卷和80份出院调查问卷。两项调查中,最常使用的ECU功能在回答中具有可比性:看电视/电影(81%,85%)、呼叫护士(68%,61%)、开关灯(63%,52%)、调节床位(53%,33%)以及玩游戏(39%,24%)。许多现场问卷受访者认为ECU极大地满足了他们对独立性的需求(42%)。两项调查的大多数受访者对ECU感到满意(71%,57%)。有待改进的方面包括用户培训、设备及其功能的改进以及设备设计。

结论

在住院环境中,脊髓损伤/疾病(SCI/D)患者对ECU接受度良好,且增强了患者的独立感。为了最大限度地提高可用性和满意度,医疗机构应确保为所有患者提供关于ECU使用和可用功能的全面培训,并提供资源以便及时进行故障排除和维护。康复启示 环境控制单元(ECU)是一种辅助技术形式,可使残疾人士(如脊髓损伤和疾病[SCI/D]患者)控制其环境中与功能和娱乐相关的方面。通过让用户重新掌控原本因残疾而受限的日常活动,使用ECU可以提高SCI/D患者的功能、独立性和心理社会幸福感。我们的研究结果表明,在SCI/D患者中,ECU被广泛接受并增强了独立感。为了最大限度地提高可用性和患者满意度,医疗机构应确保为所有患者提供关于如何使用ECU以及有哪些可用功能的全面培训,并提供资源以便及时进行故障排除和维护。

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