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“患癌很可怕,但也有好的一面”:儿童及青少年癌症成年幸存者的创伤后成长

'Having cancer was awful but also something good came out': Post-traumatic growth among adult survivors of pediatric and adolescent cancer.

作者信息

Zamora Eduardo R, Yi Jaehee, Akter Jesmin, Kim Jonghee, Warner Echo L, Kirchhoff Anne C

机构信息

Utah Department of Health, 288 N. 1460 W., PO Box 142107, Salt Lake City, UT 84114, USA.

College of Social Work, University of Utah, 395 South 1500 East, Salt Lake City, UT 84112, USA.

出版信息

Eur J Oncol Nurs. 2017 Jun;28:21-27. doi: 10.1016/j.ejon.2017.02.001. Epub 2017 Mar 21.

Abstract

PURPOSE

The cancer experience may cultivate positive psychological changes that can help reduce distress during adult survivors of childhood and adolescent cancer life course. The aim of this study is to examine the positive impact of cancer in adult survivors utilizing posttraumatic growth as a guiding framework.

METHOD

Participants were identified and recruited through the Utah Cancer Registry. Eligible cases were diagnosed with cancer age ≤20 years from 1973 to 2009, born in Utah, and were age ≥18 at study. Semi-structured phone interviews (N = 53) were analyzed using deductive analysis.

RESULTS

The primary five themes that emerged were similar to Tedeschi and Calhoun's (1996) themes for measuring positive effects, and were used to frame our results. The primary themes along with uniquely identified sub-themes are the following: personal strength (psychological confidence, emotional maturity), improved relationship with others (family intimacy, empathy for others), new possibilities (having passion work with cancer), appreciation for life (reprioritization), and spiritual development (strengthened spiritual beliefs, participating in religious rituals and activities).

CONCLUSIONS

For survivors, cancer was life altering and for many the experience continues. Understanding survivors' complex cancer experience can help improve psychosocial oncology care.

摘要

目的

癌症经历可能会带来积极的心理变化,有助于减轻童年和青少年癌症成年幸存者在人生历程中的痛苦。本研究旨在以创伤后成长为指导框架,探讨癌症对成年幸存者的积极影响。

方法

通过犹他州癌症登记处识别并招募参与者。符合条件的病例为1973年至2009年期间确诊患癌、年龄≤20岁、出生于犹他州且在研究时年龄≥18岁的患者。对53例半结构化电话访谈采用演绎分析法进行分析。

结果

出现的主要五个主题与泰德eschi和卡尔霍恩(1996年)用于衡量积极影响的主题相似,并用于构建我们的研究结果。主要主题以及独特识别的子主题如下:个人力量(心理自信、情感成熟)、与他人关系改善(家庭亲密、对他人的同理心)、新的可能性(对与癌症相关工作充满热情)、对生活的感激(重新确定优先事项)以及精神发展(强化精神信仰、参与宗教仪式和活动)。

结论

对于幸存者来说,癌症改变了生活,而且对许多人来说,这种经历仍在持续。了解幸存者复杂的癌症经历有助于改善心理肿瘤学护理。

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