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打开生命的礼物:再次面对死亡

Opening Life's Gifts: Facing Death for a Second Time.

作者信息

Hold Judith L, Blake Barbara J, Byrne Michelle, Varga Michael

出版信息

J Assoc Nurses AIDS Care. 2017 Sep-Oct;28(5):752-760. doi: 10.1016/j.jana.2017.03.011. Epub 2017 Apr 8.

Abstract

Prior to the development of effective antiretroviral therapy, persons diagnosed with HIV thought they were going to die. Now, long-term survivors are contemplating death again as they age and develop other chronic diseases. The purpose of our study was to understand the experiences of adults living with HIV for 20 or more years as they faced death for a second time. Hermeneutic phenomenology guided the research as participants shared their lived experience through storytelling. Each person's story was audiotaped and transcribed verbatim. Transcript analysis occurred as data were collected. Three common themes from the narratives were identified: Making Choices, Transformation of Fear, and Meaning of Death. Positive and negative pathways influenced each participants' decision-making. Over time, fear of dying was transformed and energy was directed toward living. Even though the participants in this study were facing death again, they recognized it as a natural part of life.

摘要

在有效的抗逆转录病毒疗法出现之前,被诊断出感染艾滋病毒的人都认为自己会死。现在,长期存活者随着年龄增长和患上其他慢性病,又再次思考死亡问题。我们研究的目的是了解感染艾滋病毒20年及以上的成年人第二次面对死亡时的经历。诠释现象学指导了这项研究,参与者通过讲故事分享他们的生活经历。每个人的故事都被录音并逐字转录。在收集数据时进行了转录分析。从这些叙述中确定了三个共同主题:做出选择、恐惧的转变和死亡的意义。积极和消极的途径影响了每个参与者的决策。随着时间的推移,对死亡的恐惧发生了转变,精力转向了生活。尽管本研究中的参与者再次面临死亡,但他们将其视为生命的自然组成部分。

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