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灵性、生命意义、心理困扰、加速死亡愿望之间的关系及其对姑息治疗患者生活质量的影响。

Relationship Between Spirituality, Meaning in Life, Psychological Distress, Wish for Hastened Death, and Their Influence on Quality of Life in Palliative Care Patients.

机构信息

Palliative and Supportive Care Service, Centre Hospitalier Universitaire Vaudois (CHUV), Lausanne, Switzerland.

Oncological Palliative Medicine, Clinic Oncology/Hematology, Department of Internal Medicine, Cantonal Hospital, St. Gallen, Switzerland; University Bern, Bern, Switzerland.

出版信息

J Pain Symptom Manage. 2017 Oct;54(4):514-522. doi: 10.1016/j.jpainsymman.2017.07.019. Epub 2017 Jul 15.

DOI:10.1016/j.jpainsymman.2017.07.019
PMID:28716616
Abstract

CONTEXT

Spiritual, existential, and psychological issues represent central components of quality of life (QOL) in palliative care. A better understanding of the dynamic nature underlying these components is essential for the development of interventions tailored to the palliative context.

OBJECTIVES

The aims were to explore 1) the relationship between spirituality, meaning in life, wishes for hastened death and psychological distress in palliative patients and 2) the extent to which these nonphysical determinants influence QOL.

METHODS

A cross-sectional study involving face-to-face interviews with Swiss palliative patients was performed, including the Schedule for Meaning in Life Evaluation (SMILE), the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being Scale (FACIT-Sp), the Idler Index of Religiosity (IIR), the Hospital Anxiety and Depression Scale (HADS), and the Schedule of Attitudes toward Hastened Death (SAHD). QOL was measured with a single-item visual analogue scale (0-10).

RESULTS

Two hundred and six patients completed the protocol (51.5% female; mean age = 67.5 years). The results indicated a significant negative relationship between FACIT-Sp/SMILE and HADS total scores (P = 0.000). The best model for QOL explained 32.8% of the variance (P = 0.000) and included the FACIT-Sp, SMILE, and SAHD total scores, the IIR "private religiosity" score, as well as the HADS "depression" score.

CONCLUSION

Both spiritual well-being and meaning in life appear to be potential protective factors against psychological distress at the end of life. Since nonphysical determinants play a major role in shaping QOL at the end of life, there is a need for the development of meaning-oriented and spiritual care interventions tailored to the fragility of palliative patients.

摘要

背景

精神、存在和心理问题是姑息治疗中生活质量(QOL)的核心组成部分。更好地理解这些组成部分的动态性质对于制定适合姑息治疗背景的干预措施至关重要。

目的

旨在探讨 1)灵性、生活意义、对加速死亡的愿望与姑息治疗患者心理困扰之间的关系,以及 2)这些非物质决定因素对 QOL 的影响程度。

方法

采用面对面访谈的方式对瑞士姑息治疗患者进行了横断面研究,包括生活意义评估计划(SMILE)、慢性疾病治疗功能评估-精神幸福感量表(FACIT-Sp)、伊德勒宗教信仰指数(IIR)、医院焦虑和抑郁量表(HADS)以及加速死亡态度量表(SAHD)。使用单一的视觉模拟量表(0-10)来衡量 QOL。

结果

206 名患者完成了方案(51.5%为女性;平均年龄 67.5 岁)。结果表明,FACIT-Sp/SMILE 与 HADS 总分呈显著负相关(P=0.000)。对 QOL 解释程度最佳的模型可解释 32.8%的方差(P=0.000),包括 FACIT-Sp、SMILE 和 SAHD 总分、IIR“私人宗教信仰”得分以及 HADS“抑郁”得分。

结论

在生命末期,精神幸福感和生活意义似乎都是心理困扰的潜在保护因素。由于非物质决定因素在塑造生命末期的 QOL 方面起着重要作用,因此需要开发针对姑息治疗患者脆弱性的以意义为导向和精神关怀的干预措施。

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