Shay L Aubree, Schmidt Susanne, Cornell Stephanie D, Parsons Helen M
UTHealth School of Public Health in San Antonio, 7411 John Smith Dr., Suite 1100, San Antonio, TX, 78229, USA.
University of Texas Health Science Center San Antonio, San Antonio, TX, USA.
J Cancer Educ. 2018 Dec;33(6):1341-1346. doi: 10.1007/s13187-017-1256-x.
This study aimed to provide a better understanding of the medical decision-making preferences and experiences of young adult survivors of pediatric, adolescent, and young adult cancers. We conducted key informant interviews and a cross-sectional mailed survey with young adult survivors (currently aged 18-39 years) of pediatric, adolescent, and young adult cancers in South Texas. Of the responding survivors, almost all wanted to be actively involved in medical decision-making, but preferences regarding family and doctor involvement varied. In open-ended responses, the most commonly reported concerns related to medical decision-making were feelings of uncertainty and fear of receiving bad news. Survivors reported that they desired more information in order to feel better about medical decision-making. Due to the variety of preferences regarding decision-making and who to include in the process, physicians should be prepared to ask and accommodate patients regarding their decision-making preferences.
本研究旨在更好地了解儿童、青少年及青年癌症成年幸存者的医疗决策偏好和经历。我们对南德克萨斯州儿童、青少年及青年癌症成年幸存者（目前年龄在18 - 39岁之间）进行了关键信息人访谈和横断面邮寄调查。在做出回应的幸存者中，几乎所有人都希望积极参与医疗决策，但在家庭和医生参与方面的偏好各不相同。在开放式回答中，与医疗决策最常报告的担忧是不确定感和害怕收到坏消息。幸存者表示，他们希望获得更多信息，以便在医疗决策时感觉更好。由于在决策以及过程中应包括哪些人方面存在各种偏好，医生应准备好询问并根据患者的决策偏好进行调整。
