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针对膀胱过度活动症患者的网站:我们的患者在阅读什么?

Patient-targeted websites on overactive bladder: What are our patients reading?

作者信息

Clancy Aisling A, Hickling Duane, Didomizio Laura, Sanaee May, Shehata Fady, Zee Rebekah, Khalil Hisham

机构信息

Division of Urogynecology, Department of Obstetrics and Gynecology, The Ottawa Hospital, Ottawa, Ontario.

Division of Urology, Department of Surgery, The Ottawa Hospital, Ottawa, Ontario.

出版信息

Neurourol Urodyn. 2018 Feb;37(2):832-841. doi: 10.1002/nau.23359. Epub 2017 Aug 1.

Abstract

AIMS

Patients often turn to the Internet for information on medical conditions. We sought to evaluate the quality and readability of highly visible websites on overactive bladder (OAB).

METHODS

A survey of 42 consecutive patients attending outpatient urogynecology clinics was performed to identify the most commonly used Internet search engines and search terms for information on OAB. The three most commonly used search engines (Google, Bing, and Yahoo!) were then queried using the three most commonly used search terms. The first 20 relevant websites from each search were reviewed. After excluding duplicates, 35 websites were analyzed. Website quality of information on OAB was evaluated using the DISCERN score, JAMA benchmark criteria, and Health on the Net code (HONcode) accreditation status. Readability was assessed using the Simplified Measure of Gobbledygook (SMOG) and Dale-Chall indices.

RESULTS

Websites were classified as advertisement/commercial (31%), health portal (29%), professional (26%), patient group (6%), and other (9%). The overall mean DISCERN score was 44 ± 18 (maximum possible score of 80). Three websites (9%) met all four JAMA benchmark criteria. Seventeen percent of websites provided adequate information on content authorship and contributions. Median SMOG and Dale-Chall indices were 9.9 (IQR 9.3-11.2) and 9.0 (IQR 8.1-9.4), respectively. Nine websites (26%) were HONcode certified.

CONCLUSIONS

Popular websites on OAB are of low quality, written for a high school to college-level readership, and often lack adequate information to assess the potential for commercial bias. Patients should be cautioned that incomplete and potentially biased information on OAB is prevalent online.

摘要

目的

患者常常会在互联网上查找有关医疗状况的信息。我们试图评估膀胱过度活动症(OAB)相关高知名度网站的质量和可读性。

方法

对42名连续就诊于门诊泌尿妇科诊所的患者进行了一项调查,以确定查找OAB信息时最常用的互联网搜索引擎和搜索词。然后使用三个最常用的搜索词对三个最常用的搜索引擎(谷歌、必应和雅虎!)进行查询。对每个搜索结果的前20个相关网站进行了审查。排除重复项后,对35个网站进行了分析。使用DISCERN评分、《美国医学会杂志》(JAMA)基准标准和网络健康代码(HONcode)认证状态对OAB相关网站信息质量进行评估。使用简化的晦涩语言度量法(SMOG)和戴尔-查尔指数评估可读性。

结果

网站分为广告/商业类(31%)、健康门户类(29%)、专业类(26%)、患者群体类(6%)和其他类(9%)。DISCERN总分均值为44±18(满分80分)。三个网站(9%)符合所有四项JAMA基准标准。17%的网站提供了关于内容作者和贡献的充分信息。SMOG指数和戴尔-查尔指数的中位数分别为9.9(四分位间距9.3 - 11.2)和9.0(四分位间距8.1 - 9.4)。九个网站(26%)获得了HONcode认证。

结论

OAB相关的热门网站质量较低,面向高中至大学水平的读者,且往往缺乏足够信息来评估商业偏见的可能性。应告诫患者,关于OAB的不完整且可能有偏见的信息在网上很普遍。

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