Lee Jeong Su, Lempp Heidi, Srivastava Vivek, Barley Elizabeth
Occupational Therapy Department, Guy's and St Thomas' NHS Foundation Trust, London, UK.
Academic Rheumatology, Faculty of life Science and Medicine, King's College London, London, UK.
BMJ Open Respir Res. 2018 Jan 24;5(1):e000244. doi: 10.1136/bmjresp-2017-000244. eCollection 2018.
Fifteen million people are affected by one or more long-term conditions in England. The cost of caring for this patient group increases every year. Several studies have been conducted to find out why people with those conditions choose to access Accident and Emergency (A&E) frequently. To our knowledge, there is no study that compares the three groups (patients, family members and hospital clinicians), and this approach may enhance understanding of A&E admissions in England. Therefore, an exploratory study was undertaken to identify key factors that contribute to A&E admissions as perceived by patients with chronic obstructive pulmonary disease (COPD) and heart failure (HF), their family members (or carers) and hospital clinicians.
A mixed methods approach was undertaken: (1) semistructured interviews with patients and their family members (or carers) and (2) a self-developed survey with hospital clinicians. A purposive sample of 15 patients (9 COPD, 6 HF), 6 family members and carers (2 COPD, 4 HF) and 13 hospital clinicians (5 doctors, 8 nurses) participated in the study.
The patients' main reason for A&E admission was severe exacerbation of their symptoms and all three parties (patients, family members or carers, hospital clinicians) agreed with this decision. Three key factors were highlighted in relation to A&E attendance: (1) patients' health-seeking behaviour, (2) perceptions about general practitioner (GP) and A&E services by patients and (3) patients' attitudes towards managing their own conditions.
Improving patients' perceptions of GP services in the management of exacerbations of HF and COPD will be important to increase patients' trust in GP services so that patients will access primary care in a timely manner to prevent exacerbations of symptoms that require A&E admission. This may be achieved by developing a close collaboration between the patients, family members (carers) and hospital clinicians over time.
在英国,1500万人受到一种或多种长期疾病的影响。照顾这一患者群体的成本每年都在增加。已经开展了多项研究,以查明患有这些疾病的人为何频繁选择前往急诊室(A&E)就诊。据我们所知,尚无研究对三组人群(患者、家庭成员和医院临床医生)进行比较,而这种方法可能会增进对英国急诊室入院情况的了解。因此,开展了一项探索性研究,以确定慢性阻塞性肺疾病(COPD)和心力衰竭(HF)患者及其家庭成员(或护理人员)以及医院临床医生所认为的导致急诊室入院的关键因素。
采用了混合方法:(1)对患者及其家庭成员(或护理人员)进行半结构化访谈,以及(2)对医院临床医生进行自行设计的调查。15名患者(9名COPD患者,6名HF患者)、6名家庭成员和护理人员(2名COPD患者的家属,4名HF患者的家属)以及13名医院临床医生(5名医生,8名护士)参与了这项有目的的抽样研究。
患者前往急诊室就诊的主要原因是症状严重加重,所有三方(患者、家庭成员或护理人员、医院临床医生)都认同这一决定。与前往急诊室就诊相关的三个关键因素得到了强调:(1)患者的求医行为,(2)患者对全科医生(GP)和急诊室服务的看法,以及(3)患者对自身病情管理的态度。
改善患者对全科医生服务在心力衰竭和慢性阻塞性肺疾病加重期管理中的认知,对于增强患者对全科医生服务的信任至关重要,这样患者将及时寻求初级医疗护理,以预防需要前往急诊室就诊的症状加重。随着时间的推移,通过患者、家庭成员(护理人员)和医院临床医生之间建立密切合作,这一点或许能够实现。