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面部移植让盲人重见光明:不只是在有视力的世界中重见光明。

Face transplantation for the blind: more than being blind in a sighted world.

出版信息

J Med Ethics. 2018 Jun;44(6):361-365. doi: 10.1136/medethics-2017-104560. Epub 2018 Feb 24.

Abstract

Face transplantation (FT) is a landmark in reconstructive surgery involving vascularised composite allotransplantation. A recent issue of FT for patients who are blind has arisen. Some bioethicists recommend not excluding a patient who is blind, as this may amount to discrimination. From an ethical standpoint, FT for those with blindness is appropriate in selected candidates. This article seeks to add to the clinical evidence supporting FT for those with blindness by detailing a complementary psychosocial perspective. Currently, there is little relevant research about the subjectivity of the blind. This is critical since the arguments against FT for the blind refer to their inability to see their face and to view the reaction of others to their disfigured faces. We begin with a brief look at examples of FT involving blindness and associated arguments. The next part is a multidisciplinary investigation of the experiences of the blind. These are gleaned from a close reading of the literature and drawing inferences, as direct studies are rare. The discussion analyses identity themes of the blind in relation to their faces: as they experience it; the face they wish to show to the world; and how others perceive and react to their face in a saturated environment of imagery and visual communication. Disability and the blind person's experience of faces are well-founded considerations for medical practitioners and ethics boards in the process of FT decision-making.

摘要

面部移植(FT)是血管化复合同种异体移植重建外科的一个里程碑。最近出现了为盲人患者进行 FT 的问题。一些生物伦理学家建议不排除盲人患者,因为这可能构成歧视。从伦理的角度来看,在选定的候选人中,为盲人进行 FT 是合适的。本文通过详细阐述补充的社会心理视角,旨在为盲人患者的 FT 提供更多临床证据。目前,关于盲人主观性的相关研究很少。这一点很关键,因为反对为盲人进行 FT 的论点是基于他们无法看到自己的面部,以及无法观察到他人对他们毁容的面部的反应。我们首先简要回顾一下涉及失明和相关论点的 FT 示例。下一部分是对盲人的体验进行多学科研究。这些是通过仔细阅读文献并进行推断得出的,因为直接研究很少。讨论分析了盲人的身份主题与他们的面部:他们的体验;他们希望向世界展示的面孔;以及在充满图像和视觉交流的饱和环境中,他人如何感知和反应他们的面部。残疾和盲人对面部的体验是 FT 决策过程中医疗从业者和伦理委员会的合理考虑因素。

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