乌干达利拉区埃鲁特南部成年人对癫痫的认知、态度和信念
Knowledge, attitude, and beliefs on epilepsy among adults in Erute South, Lira District, Uganda.
作者信息
Kiwanuka Frank, Anyango Olyet Carolyne
机构信息
Department of Critical Care School of Nursing Tehran University of Medical Sciences Entebbe Uganda.
School of Nursing International Health Sciences University Kampala Uganda.
出版信息
Epilepsia Open. 2018 May 13;3(2):264-269. doi: 10.1002/epi4.12223. eCollection 2018 Jun.
OBJECTIVE
To assess the knowledge, attitudes, and beliefs of adults on epilepsy in Erute South County, Lira District, Uganda.
METHODS
A cross-sectional study was conducted in rural Erute South County. Two hundred seventeen of 220 randomly selected adults 18 years or older participated in the study. A standardized self-administered questionnaire (Attitudes towards persons with Epilepsy "ATPE") was used for data collection. Protocol approval was sought from International Health Sciences University, and informed consent was obtained from participants at all times.
RESULTS
Two hundred seventeen of 220 invited community members completed the study. Females comprised the majority 51.6%.. Most of the respondents had a low level of knowledge on epilepsy. The mean ATPE scale knowledge score was 4.57 (standard deviation [SD] = 3.24) of a maximum score of 11. The male respondents almost had mean knowledge scores almost equal to their female counterparts (4.23, SD = 2.48; 4.51, SD = 2.54, respectively). Most respondents had negative attitudes toward epilepsy, with a mean ATPE attitude score of 73.2 (SD = 2.11) of a possible maximum score of 126. The mean attitude scores for the male and female respondents were 58.18 (SD = 4.23) and 86.62 (SD = 5.23), respectively. Most respondents had negative beliefs such as attributing epilepsy to supernatural spirits, heredity, and preference of traditional medicine and healers to conventional medicine as a treatment for epilepsy. A significant number of respondents expressed sympathetic feelings toward people living with epilepsy, specifically tolerance and kindness to those living with epilepsy.
SIGNIFICANCE
Findings could benefit policymakers, the district health team, researchers, community members, affected families, and people with epilepsy in designing awareness strategies. Knowledge on epilepsy could improve the quality of life and care for people living with epilepsy, through reducing misconceptions and stigmatization in the communities where they live.
目的
评估乌干达利拉区埃鲁特南县成年人对癫痫的知识、态度和信念。
方法
在埃鲁特南县农村地区开展了一项横断面研究。从220名随机抽取的18岁及以上成年人中，有217人参与了该研究。使用标准化的自填式问卷（“癫痫患者态度量表”，简称“ATPE”）收集数据。研究方案已获得国际健康科学大学的批准，且在任何时候都获得了参与者的知情同意。
结果
220名受邀社区成员中有217人完成了研究。女性占多数，为51.6%。大多数受访者对癫痫的了解程度较低。ATPE量表知识得分平均为4.57（标准差[SD]=3.24），满分11分。男性受访者的平均知识得分与女性受访者几乎相等（分别为4.23，SD = 2.48；4.51，SD = 2.54）。大多数受访者对癫痫持消极态度，ATPE态度得分平均为73.2（SD = 2.11），满分可能为126分。男性和女性受访者的平均态度得分分别为58.18（SD = 4.23）和86.62（SD = 5.23）。大多数受访者持有消极信念，如将癫痫归因于超自然神灵、遗传，以及在治疗癫痫时更倾向于传统医学和治疗师而非传统药物。相当数量的受访者对癫痫患者表达了同情之情，特别是对癫痫患者的宽容和友善。
意义
研究结果可为政策制定者、地区卫生团队、研究人员、社区成员、受影响家庭以及癫痫患者在设计宣传策略时提供帮助。关于癫痫的知识可以通过减少癫痫患者所在社区的误解和污名化，提高癫痫患者的生活质量和护理水平。
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