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参加社区日间中心或俱乐部会所的精神残疾者的生活质量。

Quality of life among people with psychiatric disabilities attending community-based day centres or Clubhouses.

作者信息

Hultqvist Jenny, Markström Urban, Tjörnstrand Carina, Eklund Mona

机构信息

Department of Health Sciences, Mental Health, Activity and Participation, Lund University, Lund, Sweden.

Department of Social Work, Umeå University, Umeå, Sweden.

出版信息

Scand J Caring Sci. 2018 Dec;32(4):1418-1427. doi: 10.1111/scs.12587. Epub 2018 Jun 8.

Abstract

BACKGROUND

People with psychiatric disability have been found to have a poorer quality of life (QOL) compared to the general population, and QOL is an important outcome from psychosocial rehabilitation.

AIMS

This study aimed at comparing users of two approaches to psychosocial rehabilitation in Sweden, community-based mental health day centres (DCs) and clubhouses, regarding QOL. A further aim was to investigate predictors of QOL.

METHODS

People regularly attending DCs (n = 128) or clubhouses (n = 57) completed questionnaires at baseline and a 9-month follow-up about socio-demographics, QOL, self-esteem, social network, satisfaction with daily occupations, satisfaction with services and the unit's organisation.

RESULTS

Quality of life remained stable over time in both groups. QOL at follow-up was associated with baseline self-esteem, social network, satisfaction with daily occupations and QOL at baseline. The strongest indicator of a higher QOL at follow-up was attending a clubhouse programme followed by having scored high on QOL at baseline.

CONCLUSION

Both approaches were suited for supporting their users in maintaining QOL. Visiting clubhouses seems, however, advantageous for QOL in a longer-term perspective. Although this study contributed some new knowledge, research should further address which circumstances are associated with maintaining stability in QOL.

摘要

背景

与普通人群相比,患有精神疾病的人的生活质量(QOL)较差,且生活质量是心理社会康复的一个重要成果。

目的

本研究旨在比较瑞典两种心理社会康复方法的使用者,即社区心理健康日间中心(DCs)和俱乐部会所,在生活质量方面的情况。另一个目的是调查生活质量的预测因素。

方法

定期前往日间中心(n = 128)或俱乐部会所(n = 57)的人员在基线时以及9个月随访时完成了关于社会人口统计学、生活质量、自尊、社会网络、对日常活动的满意度、对服务的满意度以及单位组织情况的问卷调查。

结果

两组的生活质量随时间保持稳定。随访时的生活质量与基线时的自尊、社会网络、对日常活动的满意度以及生活质量相关。随访时生活质量较高的最强指标是参加俱乐部会所项目,其次是在基线时生活质量得分较高。

结论

两种方法都适合支持其使用者维持生活质量。然而,从长远来看,参观俱乐部会所似乎对生活质量有利。尽管本研究提供了一些新知识,但研究应进一步探讨哪些情况与维持生活质量的稳定性相关。

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