Guglielmucci Fanny, Bonafede Michela, Franzoi Isabella Giulia, Granieri Antonella
Dipartimento di Psicologia, Università degli Studi di Torino, Turin, Italy.
Dipartimento di Epidemiologia e Igiene, Istituto Nazionale Assicurazione Infortuni sul Lavoro, Rome, Italy.
Ann Ist Super Sanita. 2018 Apr-Jun;54(2):149-159. doi: 10.4415/ANN_18_02_11.
The purpose of this paper is to present two studies. Study 1 is a literature review on psychological needs of malignant mesothelioma (MM) patients. Study 2 is aimed at assessing how patients and caregiver experience the diagnosis. In study 1 we performed a systematic literature review; while in study 2 we performed a thematic analysis of semi-structured interviews. Study 1 detected 5 psychological constructs (i.e. 1. Psychological impact of MM diagnosis; 2. Emotional aspects connected to the occupational context; 3. Coping strategies; 4. Treatment experiences; 5. Quality of life). Study 2 identified 4 themes (i.e. 1. Physical symptoms, affects, and defenses; 2. Living in or near a National Priority Contaminated Site; 3. "Nothing is like it was"; 4. "What will become of us?"). The literature review suggests a specific profile of suffering for MM, a result strengthened by the qualitative study on semi-structured interviews. The present paper highlights the lack of specific measures and clinical interventions for this distinctive population.
本文旨在介绍两项研究。研究1是关于恶性间皮瘤(MM)患者心理需求的文献综述。研究2旨在评估患者及其照顾者对诊断的体验。在研究1中,我们进行了系统的文献综述;而在研究2中,我们对半结构化访谈进行了主题分析。研究1发现了5种心理结构(即1. MM诊断的心理影响;2. 与职业环境相关的情感方面;3. 应对策略;4. 治疗经历;5. 生活质量)。研究2确定了4个主题(即1. 身体症状、情感及防御;2. 生活在国家重点污染场地或其附近;3. “一切都与过去不同了”;4. “我们会怎样?”)。文献综述揭示了MM患者独特的痛苦特征,对半结构化访谈的定性研究进一步强化了这一结果。本文强调针对这一特殊人群缺乏具体的措施和临床干预。