Tsai Samuel, Crawford Emma, Strong Jenny
School of Health and Rehabilitation Sciences, The University of Queensland, Australia.
Digit Health. 2018 May 16;4:2055207618772669. doi: 10.1177/2055207618772669. eCollection 2018 Jan-Dec.
People with chronic pain often have limited avenues for social support. Social isolation often develops as their abilities to engage in daily social and vocational activities decrease. With recent advancements in technology and increasing use of social media, virtual platforms such as blogging may provide opportunities for social support. This study analyzed published blog posts of people with chronic pain to investigate how social support occurs through blogging for chronic pain blog users and the nature of such online interactions.
A total of 810 blog posts published from January 2014 to December 2015 on 44 publicly accessible chronic pain blogs were collected and analyzed through qualitative phenomenological thematic analysis.
The Virtual Online Support Sequence (VOSS) was identified through the exchange of online comments; this sequence defines the process by which virtual social support can be established through the process of chronic pain blogging. Three subthemes were also identified in relation to social support in the online blogging environment: (a) the virtual community of pain blogging; (b) establishing social support through the VOSS; and (c) recounting everyday experiences related to pain.
These findings suggest that blogging can be useful in seeking, receiving and providing social support for people with chronic pain. Understanding this mechanism behind establishing virtual social support may potentially encourage people with chronic pain to pursue additional support online if they have limited face-to-face opportunities.
慢性疼痛患者获得社会支持的途径往往有限。随着他们参与日常社交和职业活动的能力下降,社会隔离常常随之而来。随着近期技术的进步以及社交媒体使用的增加,诸如写博客等虚拟平台可能为社会支持提供机会。本研究分析了已发表的慢性疼痛患者的博客文章,以调查慢性疼痛博客用户如何通过写博客获得社会支持以及此类在线互动的性质。
收集了2014年1月至2015年12月期间在44个公众可访问的慢性疼痛博客上发表的总共810篇博客文章,并通过定性现象学主题分析进行分析。
通过在线评论的交流确定了虚拟在线支持序列(VOSS);该序列定义了通过慢性疼痛写博客的过程建立虚拟社会支持的过程。在在线博客环境中,还确定了与社会支持相关的三个子主题:(a)疼痛写博客的虚拟社区;(b)通过VOSS建立社会支持;(c)讲述与疼痛相关的日常经历。
这些发现表明,写博客对于慢性疼痛患者寻求、获得和提供社会支持可能是有用的。了解建立虚拟社会支持背后的这一机制可能会潜在地鼓励慢性疼痛患者在面对面交流机会有限时在网上寻求更多支持。