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美国第一所湿疹学校的经验。

Experiences with the first eczema school in the United States.

作者信息

Grossman Shoshana K, Schut Christina, Kupfer Jörg, Valdes-Rodriguez Rodrigo, Gieler Uwe, Yosipovitch Gil

机构信息

Department of Dermatology, Lewis Katz School of Medicine, Temple University, Philadelphia, Pennsylvania, USA.

Institute of Medical Psychology, Justus Liebig University, Giessen, Germany.

出版信息

Clin Dermatol. 2018 Sep-Oct;36(5):662-667. doi: 10.1016/j.clindermatol.2018.05.006. Epub 2018 Jun 6.

DOI:10.1016/j.clindermatol.2018.05.006
PMID:30217280
Abstract

Patient education programs are beneficial in the treatment of chronic diseases. In Germany, France, and other countries worldwide, educating children, adolescents, and adults plus the parents of children with atopic dermatitis (AD) leads to better coping with the skin disease, as well as to a reduction in the severity of the skin symptoms and signs. The results in Europe led to the idea to also establish an eczema school in the United States. In the style of the German eczema school, an eczema school was founded in 2014 at Temple University, Philadelphia, PA. Since then, a team consisting of a dermatologist, psychologist, nutritionist, and nurse practitioner has offered an eczema school to interested patients with AD and their families three times a year. This patient education program consists of three weekly 2-hour sessions, which address proper skin care, the itch-scratch cycle, healthy nutrition, and the role of stress in AD. The current review summarizes the first experiences with the education program in the United States.

摘要

患者教育项目对慢性病治疗有益。在德国、法国以及全球其他国家,对患有特应性皮炎(AD)的儿童、青少年、成人及其父母进行教育,有助于更好地应对这种皮肤病,同时减轻皮肤症状和体征的严重程度。欧洲的这些成果促使人们萌生了在美国也建立一所湿疹学校的想法。仿照德国湿疹学校的模式,2014年在宾夕法尼亚州费城的天普大学成立了一所湿疹学校。从那时起,一个由皮肤科医生、心理学家、营养师和执业护士组成的团队每年为患有AD的感兴趣患者及其家人提供三次湿疹学校课程。这个患者教育项目包括每周一次、每次两小时的三次课程,内容涉及正确的皮肤护理、瘙痒 - 搔抓循环、健康营养以及压力在特应性皮炎中的作用。本综述总结了该教育项目在美国的初步经验。

相似文献

1
Experiences with the first eczema school in the United States.美国第一所湿疹学校的经验。
Clin Dermatol. 2018 Sep-Oct;36(5):662-667. doi: 10.1016/j.clindermatol.2018.05.006. Epub 2018 Jun 6.
2
Therapeutic patient education in atopic dermatitis: worldwide experiences.特应性皮炎的治疗性患者教育:全球经验
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Managing eczema in children--a treatment update.儿童湿疹的管理——治疗进展
J Fam Pract. 2011 Nov;60(11):660-8.
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Texting atopic dermatitis patients to optimize learning and eczema area and severity index scores: A pilot randomized control trial.给特应性皮炎患者发送短信以优化学习及湿疹面积和严重程度指数评分:一项随机对照试验试点研究
Pediatr Dermatol. 2018 Jul;35(4):453-457. doi: 10.1111/pde.13510. Epub 2018 May 2.
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Pruritus and atopic dermatitis.瘙痒和特应性皮炎。
Clin Rev Allergy Immunol. 2011 Dec;41(3):237-44. doi: 10.1007/s12016-010-8230-2.
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[Neurodermatitis: endogenous eczema--atopic dermatitis--atopic eczema].[神经性皮炎:内源性湿疹——特应性皮炎——特应性湿疹]
Kinderkrankenschwester. 1999 Mar;18(3):91-5.
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Characteristics of children and adolescents with atopic dermatitis who attended therapeutic patient education.特应性皮炎患儿和青少年接受治疗性患者教育的特征。
J Eur Acad Dermatol Venereol. 2021 Nov;35(11):2263-2269. doi: 10.1111/jdv.17526. Epub 2021 Jul 29.
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Therapeutic patient education in children with moderate to severe atopic dermatitis: A multicenter randomized controlled trial in China.中度至重度特应性皮炎患儿的治疗性患者教育:一项中国的多中心随机对照试验。
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J Clin Med. 2024 Sep 11;13(18):5368. doi: 10.3390/jcm13185368.
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Effectiveness of atopic dermatitis patient education programs - a systematic review and meta-analysis.特应性皮炎患者教育项目的有效性——一项系统评价与荟萃分析
Arch Dermatol Res. 2024 Apr 25;316(5):135. doi: 10.1007/s00403-024-02871-y.
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Factors facilitating shared decision making in eczema: Met and unmet needs from the patient perspective.
促进湿疹共同决策的因素:从患者角度看已满足和未满足的需求。
JAAD Int. 2023 Feb 2;11:95-102. doi: 10.1016/j.jdin.2022.12.008. eCollection 2023 Jun.
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The role of the nurse in the care and management of patients with atopic dermatitis.护士在特应性皮炎患者护理与管理中的作用。
BMC Nurs. 2020 Nov 4;19(1):102. doi: 10.1186/s12912-020-00494-y.