运动神经元病的多学科管理。
Multidisciplinary management of motor neurone disease.
机构信息
BSc (Adv), MBBS, Senior Resident Medical Officer, South Eastern Sydney Local Health District, NSW Health; Conjoint Associate Lecturer, UNSW.
@MBBS, FRACP, FAChPM, LLB, Palliative Care Consultant, St George Hospital and Calvary Healthcare; Conjoint Lecturer, UNSW.
出版信息
Aust J Gen Pract. 2018 Sep;47(9):593-597. doi: 10.31128/AJGP-02-18-4495.
BACKGROUND
Motor neurone disease (MND) is the term for a group of progressive, debilitating, neurodegenerative disorders that affect various aspects of a patient's life, including speech, swallowing, breathing and limb function.
OBJECTIVE
This review outlines the common symptoms and issues in MND and the latest available treatment options. A multidisciplinary approach to MND, involving the general practitioner (GP) and rehabilitation, palliative care and allied health services, is discussed.
DISCUSSION
The complexity of care for patients with MND and their families is best managed using a multidisciplinary team approach, with the GP as an important member of that team. The biopsychosocial care model discussed can improve the quality of life for patients and carers, as well as the life expectancy of patients with MND.
背景
运动神经元病（MND）是一组进行性、使人虚弱的神经退行性疾病的统称，影响患者生活的各个方面，包括言语、吞咽、呼吸和肢体功能。
目的
本文概述了 MND 的常见症状和问题以及最新的可用治疗选择。讨论了涉及全科医生（GP）和康复、姑息治疗以及联合保健服务的 MND 多学科方法。
讨论
MND 患者及其家属的护理复杂性最好采用多学科团队方法进行管理，GP 是该团队的重要成员。所讨论的生物心理社会护理模式可以提高患者和照护者的生活质量，以及 MND 患者的预期寿命。
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