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青少年和青年癌症幸存者的社会幸福感。

Social Well-Being in Adolescent and Young Adult Cancer Survivors.

机构信息

Department of Psychological Sciences, University of Connecticut, Storrs, Connecticut.

出版信息

J Adolesc Young Adult Oncol. 2019 Feb;8(1):32-39. doi: 10.1089/jayao.2018.0043. Epub 2018 Sep 22.

Abstract

PURPOSE

Adolescents and young adults (AYAs) diagnosed with cancer between ages 15-39 years are a unique and vulnerable population, encountering many typical developmental challenges while also dealing with the demands of illness and its aftermath. Overwhelming evidence demonstrates the importance of social well-being in survivorship quality of life. For AYAs, social connections may be of heightened importance as they assert independence from their parents and create their own personal lives. Few studies have characterized AYA survivors' social well-being and its determinants over time, particularly how psychological adjustment might promote improved social well-being.

METHODS

We assessed 83 AYA survivors at two time points across 1 year to characterize their social well-being, identify common social connection concerns, describe how social well-being changes over time, examine how psychological adjustment relates to social well-being at a given time point, and determine whether psychological adjustment predicts changes in social well-being over time.

RESULTS

Our sample rated their quality of life as lower than population mean scores, and despite relatively high levels of social support and satisfaction, more than half of participants also reported concerns in specific social well-being domains. On average, social well-being increased across the year. Psychological adjustment was strongly positively related to various aspects of social well-being, and it predicted improved social well-being over time.

CONCLUSION

These results suggest that improving psychological adjustment may be important for strengthening social support networks and improving AYAs' lives in survivorship.

摘要

目的

15 至 39 岁被诊断患有癌症的青少年和年轻人(AYAs)是一个独特且脆弱的群体,他们在面临典型的发展挑战的同时,还需要应对疾病及其后果带来的需求。大量证据表明社交幸福感对生存质量至关重要。对于 AYAs 来说,社交联系可能更为重要,因为他们正在从父母那里获得独立并建立自己的个人生活。很少有研究能够描述 AYA 幸存者的社交幸福感及其随时间变化的决定因素,尤其是心理调整如何促进社交幸福感的提高。

方法

我们在一年的两个时间点评估了 83 名 AYA 幸存者,以描述他们的社交幸福感,确定常见的社交联系关注点,描述社交幸福感随时间的变化,研究心理调整如何与特定时间点的社交幸福感相关,以及确定心理调整是否可以预测社交幸福感随时间的变化。

结果

我们的样本将其生活质量评为低于人口平均得分,尽管社交支持和满意度相对较高,但仍有一半以上的参与者报告了特定社交幸福感领域的担忧。平均而言,社交幸福感在一年中有所增加。心理调整与社交幸福感的各个方面都呈强烈的正相关,并且可以预测社交幸福感随时间的改善。

结论

这些结果表明,改善心理调整可能对加强 AYAs 的社交支持网络和改善他们的生存质量很重要。

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