Imkome Ek-Uma, Waraassawapati Koson
a Faculty of Nursing , Thammasat University , Klong-luang , Patumtanee , Thailand.
b Nakhon Phanom Ratchanakarin Psychiatric Hospital , Nakhon Phanom , Thailand.
Issues Ment Health Nurs. 2018 Oct;39(10):858-864. doi: 10.1080/01612840.2018.1488312. Epub 2018 Sep 25.
This study investigates primary caregiver perspectives on long-term experiences of caring for individuals with schizophrenia in Thailand. Study participants were 30 caregivers in the Bangkok Metropolitan Area (BMA). Data were collected by semi-structured qualitative interview and analyzed by thematic analysis. Participants defined psychotic symptoms as symptoms requiring prevention and good care, which caregivers must learn to live with. Caregivers were reported to have "acquired experience in controlling psychotic symptoms and recognizing frequency, timing, content, warning signs, and patient response." Schizophrenic patients experienced difficulty engaging in community activities and encountered teasing, stigma, and social isolation. These findings suggest that caregivers saw psychotic symptoms as necessarily leading to ongoing serious problems. The difficulty of dealing with such symptoms was aggravated by caregiver poverty, emotional condition, and advanced age. Innovations in psychiatric and mental health nursing intervention are needed, including psycho-educational community activities to confront the teasing, stigma, and social isolation of individuals with schizophrenia. Simulation applications on mobile phones and Internet are recommended.
本研究调查了泰国主要照顾者对长期照顾精神分裂症患者经历的看法。研究参与者为曼谷都会区(BMA)的30名照顾者。通过半结构化定性访谈收集数据,并采用主题分析法进行分析。参与者将精神病症状定义为需要预防和妥善照料的症状,照顾者必须学会与之共处。据报告,照顾者“在控制精神病症状以及识别症状频率、发作时间、内容、警示信号和患者反应方面积累了经验”。精神分裂症患者在参与社区活动时遇到困难,并遭受取笑、污名化和社会孤立。这些发现表明,照顾者认为精神病症状必然会导致持续的严重问题。照顾者的贫困、情绪状况和高龄加剧了应对此类症状的难度。需要在精神科和心理健康护理干预方面进行创新,包括开展心理教育社区活动,以应对精神分裂症患者所遭受的取笑、污名化和社会孤立。建议在手机和互联网上应用模拟程序。