School of Rehabilitation Science, McMaster University, Hamilton, Canada.
School of Occupational Therapy & Occupational Science Field, Western University, London, Canada.
Disabil Rehabil. 2019 Dec;41(25):3005-3015. doi: 10.1080/09638288.2018.1483430. Epub 2018 Oct 9.
Discharge decisions have significant implications for older adults and their involved family members. Evidence of older adult and family members' engagement in discharge decision-making, however, varies widely. Some recent work shows assumed associations between ageing, diminished participation in healthcare decision-making and increased reliance on family members. Other research suggests that family members adopt strategies to promote older adults' participation in decision-making. Relational autonomy theory suggests that individuals have differing levels of autonomy and that individuals' agency can be supported (or marginalized) by others. Using three case studies, we examine traditional and relational conceptions of autonomy and explore how relational approaches could inform healthcare practice. Taking a critical feminist bioethics perspective, we present a secondary analysis of three microethnographic case studies focused on discharge planning with older adults in one Canadian inpatient rehabilitation setting. The data consist of observations of discharge planning family conferences and semi-structured interviews with older adults and family members. Tensions between older adults' wishes to return home and their diminished participation in discharge decisions, and family members' assumption of a primary role in discharge decision-making and their wish for the older adult to move to a supported setting were apparent. To reconcile these tensions, the older adults' family members in these cases employed strategies to promote older adults' participation in decision-making that were consistent with relational autonomy theory. The analysis suggests that older adults' participation in discharge decision-making processes could be better promoted through relational approaches.Implications for rehabilitation • Adopting an approach guided by relational autonomy might better enable patients to participate in decision-making than would an approach guided by traditional conceptions of autonomy. • Rehabilitation professionals could seek assistance from family members and guide them toward collaborative partnerships. • A range of strategies may be employed to customize relational approaches to enhance autonomy: • having several different conversations with patients to enable multiple chances to contribute knowledge and views; • involving family members or taking the time to explain information several different times and in diverse manners; • showing patients videos or photos of discharge locations; • exploring a breadth of potential discharge options; • accompanying patients to visit different options in person; and • getting patients in touch with individuals who have made similar choices. • It is recognized that taking a relational approach might be time-consuming and that practice contexts may not be conducive to such practice.
出院决策对老年人及其相关家庭成员有重大影响。然而,老年人及其家庭成员参与出院决策的证据差异很大。一些最近的研究表明,随着年龄的增长,老年人参与医疗保健决策的能力下降,对家庭成员的依赖增加,这与人们的假设有关。其他研究表明,家庭成员采取策略来促进老年人参与决策。关系自主理论表明,个体具有不同程度的自主权,个体的能动性可以得到他人的支持(或边缘化)。通过三个案例研究,我们考察了传统和关系自主的概念,并探讨了关系方法如何为医疗保健实践提供信息。我们从批判女性主义生物伦理学的角度出发,对一个加拿大住院康复机构中针对老年人出院计划的三个微观民族志案例研究进行了二次分析。数据包括对出院计划家庭会议的观察以及对老年人和家庭成员的半结构化访谈。老年人希望回家和他们在出院决策中的参与度下降之间的紧张关系,以及家庭成员承担主要决策角色和希望老年人搬到支持性环境的愿望之间的紧张关系显而易见。为了调和这些紧张关系,这些案例中的老年人的家庭成员采用了一些策略来促进老年人参与决策,这些策略与关系自主理论一致。分析表明,通过关系方法可以更好地促进老年人参与出院决策过程。对康复的影响 • 采用以关系自主为指导的方法可能比以传统自主概念为指导的方法更能使患者参与决策。 • 康复专业人员可以寻求家庭成员的帮助,并指导他们建立合作关系。 • 可以采用一系列策略来定制关系方法以增强自主性: • 与患者进行多次不同的对话,使他们有多次机会提供知识和观点; • 让家庭成员参与进来,或者花时间多次以不同的方式解释信息; • 向患者展示出院地点的视频或照片; • 探讨各种潜在的出院选择; • 陪患者亲自去不同的地方参观; • 帮助患者与做出类似选择的人取得联系。 • 人们认识到,采取关系方法可能很耗时,而且实践环境可能不利于这种实践。