Department of Social & Policy Sciences, Centre for Death & Society, University of Bath, Claverton Down, Bath, BA2 7AY, United Kingdom.
Soc Sci Med. 2018 Nov;217:112-120. doi: 10.1016/j.socscimed.2018.09.048. Epub 2018 Sep 25.
The literature on death expectation in ill old age is mostly medical. A social science standpoint (especially quantitative) is practically absent. However, whether families, social and healthcare services can anticipate, support and prepare for the deaths of ill old adults is not reducible to the biomedical paradigm. Yet it is critical for end of life care (EOLC) policy. This study's aim is to investigate relatives' perception of death as unexpected in relation to both disease-related and care-related factors. Using the English Longitudinal Study of Ageing End-of-life Interviews Wave 6 this paper draws on probit regression analysis of unexpected (vs. expected) death in ill adults aged 50+. Findings are interpreted considering the containment of sudden death and the trajectories of dying in ill old age. The latter display overall visible decline preceding death. On this basis, EOLC literature and policy evidence death's uncertain timing as much as death's certain emergence in the horizon of expectation. Therefore, unexpected death in ill old age was interpreted as a failure to acknowledge dying, rather than the impossibility of discerning its approach. Very old age, dementia diagnoses and supported care environments were found to shape unexpected death.
关于重病老年患者死亡预期的文献大多是医学方面的。实际上,从社会科学角度(尤其是从定量角度)进行的研究几乎没有。然而,家庭、社会和医疗保健服务能否预测、支持和为重病老年患者的死亡做准备,并不仅仅取决于生物医学模式。这对于临终关怀政策至关重要。本研究旨在探讨亲属对死亡的看法,即与疾病相关因素和护理相关因素有关的死亡是否出乎意料。本文利用英国老龄化纵向研究临终访谈第六波的数据,通过概率回归分析,研究了 50 岁及以上重病成年人中意外(相对于预期)死亡的情况。在考虑到突然死亡的遏制和重病老年患者死亡轨迹的情况下,对研究结果进行了解释。后者显示出在死亡前整体可见的衰退。在此基础上,临终关怀文献和政策证据表明,死亡的时间不确定,就像其在预期范围内的出现一样确定。因此,重病老年患者的意外死亡被解释为未能认识到临终,而不是无法察觉其临近。高龄、痴呆症诊断和支持性护理环境被认为会导致意外死亡。