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“错误出生”索赔与抚养残疾子女的悖论

"Wrongful Birth" Claims and the Paradox of Parenting a Child with a Disability.

作者信息

Yakren Sofia

机构信息

CUNY School of Law.

出版信息

Fordham Law Rev. 2018 Nov;87(2):583-628.

Abstract

"Wrongful birth" is a controversial medical malpractice claim raised by the mother of a child born with a disability against a medical professional whose failure to provide adequate prenatal information denied her the chance to abort. Plaintiff-mothers are required to testify that, but for the defendant's negligence, they would have terminated their pregnancy. Accordingly, alongside pro-life activists, disability rights advocates have opposed "wrongful birth" claims for stigmatizing and discriminating against people with disabilities by framing their very existence as a harm. Despite plaintiff-mothers' need for caretaking resources, scholars have recommended solutions ranging from the wholesale elimination of the wrongful birth claim to the curtailment of damages. To the extent scholars and the media have acknowledged mothers in the wrongful birth discourse at all, often it has been to blame and shame them for allegedly rejecting their children. They have paid little attention to the ways wrongful birth jurisprudence forces mothers to disavow their children in court, and thereby to forfeit the "good mother" ideal, in exchange for the possibility of securing necessary resources for their children. Commentators who question plaintiff-mothers' maternal devotion exacerbate the psychological toll the law already imposes. This Article shifts the blame from mothers to the legal system. While wrongful birth proceedings portray mothers' feelings about their children as categorically negative, real life accounts and social science findings reveal the true paradoxical experiences of all mothers, including plaintiff-mothers raising children with disabilities. To acknowledge this complex reality and mitigate the emotional strain of bringing a wrongful birth claim, this Article proposes several legal reforms: (1) broadening the analysis of emotional distress to reflect and legitimize mothers' paradoxical feelings about their children; (2) reframing the harm to mothers as loss of reproductive choice rather than as the birth of a flawed child and, accordingly, expanding available economic damages to include plaintiff-mothers' unexpected childcare responsibilities; and (3) educating plaintiffs' attorneys to empathize with the emotional aspects of mothers' litigation experiences and to counsel mothers accordingly. Today's approach to "wrongful birth" claims, which both stigmatizes disability and strains caretakers, demands urgent reform.

摘要

“错误出生”是一种存在争议的医疗事故索赔,由残疾儿童的母亲针对医疗专业人员提出,该医疗专业人员未能提供足够的产前信息,剥夺了她堕胎的机会。原告母亲必须作证称,若不是被告的疏忽,她们本会终止妊娠。因此,与支持生命权的活动人士一道,残疾权益倡导者反对“错误出生”索赔,因为这种索赔将残疾人士的存在视为一种伤害,从而对他们进行了污名化和歧视。尽管原告母亲需要照顾孩子的资源,但学者们提出了各种解决方案,从全面取消“错误出生”索赔到减少损害赔偿。就学者和媒体在“错误出生”讨论中对母亲的关注而言,往往是指责和羞辱她们所谓的抛弃孩子的行为。他们很少关注“错误出生”判例法如何迫使母亲们在法庭上否认自己的孩子,从而放弃“好母亲”的理想,以换取为孩子获取必要资源的可能性。质疑原告母亲母爱的评论家加剧了法律已经造成的心理负担。本文将指责对象从母亲转移到了法律制度上。虽然“错误出生”诉讼将母亲对孩子的感情描绘得完全负面,但现实生活中的描述和社会科学研究结果揭示了所有母亲,包括抚养残疾孩子的原告母亲,真实的矛盾经历。为了承认这一复杂现实并减轻提出“错误出生”索赔所带来的情感压力,本文提出了几项法律改革建议:(1)拓宽对精神痛苦的分析,以反映并使母亲对孩子的矛盾情感合法化;(2)将对母亲造成伤害的描述从有缺陷孩子的出生转变为生育选择权的丧失,并相应地扩大可得的经济损害赔偿范围,将原告母亲意外的育儿责任包括在内;(3)教育原告律师理解母亲诉讼经历中的情感方面,并据此为母亲提供建议。当今处理“错误出生”索赔的方式既污名化了残疾,又给照顾者带来压力,迫切需要改革。

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