St. Louis Children's Hospital/Washington University School of Medicine, Department of Psychology, St. Louis, Missouri.
Doernbecher Children's Hospital/Oregon Health & Science University, Department of Pediatrics, Portland, Oregon.
Pediatr Neurol. 2018 Dec;89:58-62. doi: 10.1016/j.pediatrneurol.2018.09.007. Epub 2018 Sep 18.
Pediatric critical care survivors often suffer persisting multisystem health problems and are left with treatment needs that go unmet due to limits in current care models. We proposed that integration of neuropsychology into neurocritical care follow-up provides incremental benefit to the identification and treatment of persisting complications and reduction in co-morbidities.
The aims of this study were three-fold. First, we described pilot programs at two pediatric hospitals as models for implementing systematic follow-up care with interdisciplinary clinic teams consisting of critical care, neurology, and neuropsychology. Second, we described working models specific to neuropsychological service delivery in these programs. Third, we presented preliminary data from the first six months of one of the pilot programs in order to examine incremental benefit of neuropsychology in improving patient care and parent satisfaction.
A total of 16 patients (age range three to 17 years) were seen by neuropsychology within the first six months of the program. Results showed that integration of neuropsychology into follow-up care resulted in recommendations being made for services or concerns not already addressed in 81% of cases. Parents reported high satisfaction, endorsing the highest possible rating on 96% of all items. Parents reported that neuropsychological consultation improved their understanding and communication with their child, and helped them know what to expect from their child during postacute recovery.
The results of this pilot study suggest that integration of neuropsychology into neurocritical care follow-up programs contributes to parent satisfaction and may provide incremental benefit to patient care.
儿科重症监护幸存者经常遭受持续的多系统健康问题,并因当前护理模式的限制而留下未满足的治疗需求。我们提出,将神经心理学纳入神经重症监护随访中,可以为识别和治疗持续存在的并发症以及减少合并症提供额外的益处。
本研究的目的有三。首先,我们描述了两家儿童医院的试点项目,作为实施具有跨学科诊所团队的系统随访护理的模式,该团队由重症监护、神经科和神经心理学组成。其次,我们描述了这些项目中神经心理学服务提供的具体工作模式。第三,我们展示了其中一个试点项目的前六个月的初步数据,以检验神经心理学在改善患者护理和家长满意度方面的额外益处。
在该项目的前六个月内,共有 16 名(年龄 3 至 17 岁)患者接受了神经心理学评估。结果表明,将神经心理学纳入随访护理中,有 81%的情况下,针对已经存在的服务或问题提出了建议。家长报告了高度的满意度,对所有项目的最高评分给予了 96%的评价。家长表示,神经心理学咨询改善了他们对孩子的理解和沟通,并帮助他们了解孩子在急性后期恢复期间的情况。
这项试点研究的结果表明,将神经心理学纳入神经重症监护随访计划有助于提高家长满意度,并可能为患者护理提供额外的益处。