1 Division of Quality of Life and Palliative Care, Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee.
2 Division of Inpatient Medicine, Department of Pediatrics, University of Utah, Salt Lake City, Utah.
J Palliat Med. 2019 May;22(5):553-556. doi: 10.1089/jpm.2018.0469. Epub 2018 Dec 27.
The impact of pediatric palliative care (PPC) is well established for children with chronic complex diseases. However, PPC likely also benefits previously healthy children with acute life-threatening conditions. To determine the incidence and impact of PPC for previously healthy patients who died in a pediatric hospital. Retrospective chart review of all pediatric deaths over four years. Patients were 0 to 25 years old, died during an inpatient stay at an academic pediatric hospital ≥48 hours after admission, and had no complex chronic conditions (CCCs) before admission. One hundred sixty-seven patients met the eligibility criteria. Most died in intensive care settings ( = 149, 89%), and few ( = 34, 20%) received PPC consultations or services. Patients who received PPC services were more likely to receive a multidisciplinary care conference than did patients without PPC support (70.5% vs. 39.9%; = 0.001), which also occurred earlier for patients who received PPC services (seven days vs. two days before death; = 0.04). Most patients had documented end-of-life planning in their medical records; however, this occurred earlier for patients who received PPC consultation (9.5 days before death) than for those who did not (two days before death; < 0.0001). Patients receiving PPC support (67.7%) were also more likely to have a do-not-resuscitate/intubate order before death than those who did not (39.9%; = 0.004). Pediatric patients without known CCCs who subsequently die as inpatients benefit from PPC in terms of goals of care discussions and documentation of end-of-life care preferences.
儿科姑息治疗(PPC)对患有慢性复杂疾病的儿童的影响已得到充分证实。然而,PPC 可能也有益于以前健康但患有危及生命的急性疾病的儿童。为了确定在儿科医院死亡的以前健康的患者中 PPC 的发生率和影响。对四年间所有儿科死亡患者进行回顾性图表审查。患者年龄在 0 至 25 岁之间,在入院后至少 48 小时内死于学术儿科医院的住院期间,且入院前无复杂慢性疾病(CCC)。符合入选标准的患者有 167 名。大多数患者死于重症监护病房( = 149,89%),很少( = 34,20%)接受 PPC 咨询或服务。接受 PPC 服务的患者比未接受 PPC 支持的患者更有可能接受多学科护理会议(70.5%比 39.9%; = 0.001),接受 PPC 服务的患者也更早接受该会议(七天比死亡前两天; = 0.04)。大多数患者的医疗记录中都有记录临终计划;然而,接受 PPC 咨询的患者(死亡前 9.5 天)比未接受咨询的患者(死亡前两天)更早记录该计划; < 0.0001)。接受 PPC 支持的患者(67.7%)在死亡前更有可能有不复苏/插管医嘱,而未接受支持的患者为 39.9%; = 0.004)。随后作为住院患者死亡且无已知 CCC 的儿科患者从 PPC 中受益,因为该治疗可以讨论照护目标并记录临终关怀偏好。