痴呆症患者及其配偶照顾者的需求：对社区居民的一项研究。
Needs of people with dementia and their spousal carers: A study of those living in the community.
作者信息
Morrisby Claire, Joosten Annette, Ciccarelli Marina
机构信息
Curtin University, Bentley, Western Australia, Australia.
出版信息
Australas J Ageing. 2019 Jun;38(2):e43-e49. doi: 10.1111/ajag.12609. Epub 2019 Jan 20.
OBJECTIVE
To identify care and support needs, as reported by people with dementia and their spousal carers living in the community in metropolitan Western Australia.
METHODS
An interpretive description approach was utilised. Semi-structured interviews were conducted with 10 dyads of spousal carers and people with dementia. Comparative analysis was used to develop themes regarding need, which were reviewed using two focus groups of spousal carers.
RESULTS
Three major themes were developed through analysis of data from the interviews and were refined by the focus groups: (a) environmental enablers to support care; (b) strong caring relationships; and (c) adaptation of daily life roles.
CONCLUSIONS
As dementia progresses, continued support to maintain participation in meaningful activity is needed. Strong caring relationships, knowledge and an understanding of dementia among health professionals, service providers and family members were key to maintaining support for the needs of people with dementia and their spousal carers.
目的
确定西澳大利亚州首府城市社区中痴呆症患者及其配偶照顾者所报告的护理和支持需求。
方法
采用解释性描述方法。对10对配偶照顾者和痴呆症患者进行了半结构化访谈。使用比较分析法来确定有关需求的主题，并通过两组配偶照顾者焦点小组对这些主题进行了审查。
结果
通过对访谈数据的分析得出了三个主要主题，并经焦点小组进行了完善：(a) 支持护理的环境促进因素；(b) 牢固的照顾关系；(c) 日常生活角色的调整。
结论
随着痴呆症病情的发展，需要持续提供支持以维持对有意义活动的参与。健康专业人员、服务提供者和家庭成员之间牢固的照顾关系、对痴呆症的了解和认识是维持对痴呆症患者及其配偶照顾者需求支持的关键。
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