East Kent Hospitals University NHS Trust, Canterbury, UK.
Royal London Hospital, Haemophilia Centre, London, UK.
Haemophilia. 2019 May;25(3):514-520. doi: 10.1111/hae.13727. Epub 2019 Mar 13.
European guidelines on the care of haemophilia recommend ready access to a range of services provided by a multidisciplinary team of specialists including physiotherapy. However, the scope of physiotherapy provided is unknown.
The Physiotherapists Committee of the European Association for Haemophilia and Allied Disorders (EAHAD) conducted a web-based survey to quantify the role and scope of practice of physiotherapists involved in haemophilia care. The survey was sent to more than 200 physiotherapists registered on the EAHAD database. Questions concerned their work practices including assessment and treatment activities and level of autonomy.
Eighty physiotherapists from twenty-four European countries responded. Considerable heterogeneity exists in roles, responsibilities, and clinical practice of physiotherapists, particularly in access to and type of physiotherapy treatment provided, as well as the skill set and autonomy of physiotherapists to make independent assessment and treatment decisions.
This pan-European survey establishes a context to support physiotherapy role development and professional identity. Key recommendations include the following: (a) establishing a pan-European network to support collaboration and education for physiotherapists working in haemophilia, (b) developing a core skills and capability framework to ensure person-centred approaches are central as well as working in partnership with those with the condition to maximize early recovery, support self-management and enablement in remaining active and independent, (c) regular training, standardized validation and maintenance of competency for assessment tools, (d) well-designed randomized clinical studies with larger numbers of participants from multiple sites should be the focus of future research.
欧洲血友病治疗指南建议，血友病患者应能随时获得由多学科专家团队提供的一系列服务，包括物理治疗。然而，提供的物理治疗范围尚不清楚。
欧洲血友病和相关疾病协会（EAHAD）的物理治疗师委员会进行了一项基于网络的调查，以量化参与血友病护理的物理治疗师的角色和实践范围。该调查发送给了 EAHAD 数据库中注册的 200 多名物理治疗师。问题涉及他们的工作实践，包括评估和治疗活动以及自主权水平。
来自欧洲二十四个国家的 80 名物理治疗师做出了回应。物理治疗师的角色、责任和临床实践存在相当大的异质性，特别是在获得和提供的物理治疗类型、物理治疗师的技能组合以及做出独立评估和治疗决策的自主权方面。
这项全欧洲范围的调查为支持物理治疗师的角色发展和专业认同建立了背景。主要建议包括以下几点：（a）建立一个全欧洲的网络，以支持在血友病领域工作的物理治疗师之间的合作和教育；（b）制定一个核心技能和能力框架，以确保以患者为中心的方法是核心，与患者合作，最大限度地促进早期康复，支持自我管理，并使他们能够保持活跃和独立；（c）定期培训，对评估工具进行标准化验证和能力维护；（d）应将重点放在未来的研究上，设计良好的多中心随机临床试验，纳入更多参与者。
