Department of Psychiatry, University of Toronto, Ontario, Canada.
Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada.
J Palliat Care. 2023 Jul;38(3):307-315. doi: 10.1177/0825859719871538. Epub 2019 Sep 2.
Caregivers of patients with cancer cope with socioemotional challenges, which can adversely affect their well-being. We developed an intervention, expressive writing and reading (EWR), to promote emotional processing and social connectedness among caregivers. In a single-arm pilot study, we assessed its feasibility and perceived usefulness.
Caregivers participated in weekly 1.5-hour EWR workshops offered over 20 weeks. After 4 sessions, they completed semistructured interviews, which were analyzed using qualitative descriptive analysis.
Of 65 caregivers approached, 25 were eligible, 18 consented, and 9 (50%) caregivers completed at least 4 workshops and the interview. Their responses revealed 3 themes: "inner processing," "interpersonal learning," and "enhanced processing and preparedness." Perceived benefits of EWR included emotional and cognitive processing (individual and collaborative), learning from the emotions and experiences of other caregivers, and preparing for upcoming challenges.
Expressive writing and reading can be a safe and cost-effective supportive intervention for caregivers of patients with cancer.
癌症患者的照料者会面临社会心理方面的挑战,这可能会对他们的健康产生不利影响。我们开发了一种干预措施,即表达性写作和阅读(EWR),以促进照料者的情绪处理和社交联系。在一项单臂试点研究中,我们评估了其可行性和感知有用性。
照料者参加了每周一次、每次 1.5 小时的 EWR 研讨会,共 20 周。完成 4 次会议后,他们完成了半结构化访谈,使用定性描述性分析对访谈内容进行了分析。
在接触的 65 名照料者中,有 25 名符合条件,18 名同意参加,9 名(50%)照料者完成了至少 4 次研讨会和访谈。他们的回答揭示了 3 个主题:“内心处理”、“人际学习”和“增强的处理和准备”。EWR 的感知益处包括情绪和认知处理(个体和协作)、从其他照料者的情绪和经验中学习,以及为即将到来的挑战做好准备。
表达性写作和阅读可以作为癌症患者照料者的一种安全且具有成本效益的支持性干预措施。