Division of Pediatric Neuropsychology, Children's National Health System, Center for Autism Spectrum Disorder, 15245 Shady Grove Rd., Suite 350, Rockville, MD, 20850, USA.
The Catholic University of America, 620 Michigan Ave., N.E., Washington, DC, 20064, USA.
J Autism Dev Disord. 2020 Jan;50(1):51-62. doi: 10.1007/s10803-019-04218-3.
Research on families' experiences raising children with Autism Spectrum Disorder (ASD) is limited in minority ethnic and cultural groups, such as the Arab American community. Twenty Arab American caregivers raising children with ASD completed online questionnaires regarding their experiences with stigma and acculturation. Nine participants completed follow-up phone interviews. Perceived stigma fell in the low to moderate range. Acculturation related to social interactions indicated slightly greater assimilation compared to separation, and slightly greater integration over marginalization. During interviews, participants discussed the impact of disability stigma, distancing from their communities, and parent gender roles. By better understanding Arab American families raising children with ASD professionals can work towards improving clinical services for these families.
关于自闭症谱系障碍(ASD)儿童家庭养育经验的研究在少数民族和文化群体中受到限制,例如阿拉伯裔美国社区。20 名抚养 ASD 儿童的阿拉伯裔美国照顾者完成了关于他们在污名化和文化适应方面经历的在线问卷调查。其中 9 名参与者完成了后续电话访谈。感知污名化处于低到中度范围。与社会互动相关的文化适应表明与分离相比略有更多的同化,与边缘化相比略有更多的融入。在访谈中,参与者讨论了残疾污名、与社区疏远以及父母性别角色的影响。通过更好地了解阿拉伯裔美国家庭抚养 ASD 儿童的情况,专业人员可以努力改善这些家庭的临床服务。