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儿科实践中的家族史采集:一项定性访谈研究。

Family History Taking in Pediatric Practice: A Qualitative Interview Study.

作者信息

Tessier Laure, Brehaut Jamie C, Potter Beth K, Chakraborty Pranesh, Carroll June C, Wilson Brenda J

机构信息

Newborn Screening Ontario, Children's Hospital of Eastern Ontario, Ottawa, Ontario, Canada,

Clinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.

出版信息

Public Health Genomics. 2019;22(3-4):110-118. doi: 10.1159/000503729. Epub 2019 Oct 29.

Abstract

BACKGROUND

Family history (FH) is a risk factor for many conditions in pediatric practice. There is no standard of care regarding FH taking, and only a few published studies about current practice.

OBJECTIVES

To explore in depth pediatricians' perceptions, attitudes, beliefs, and practices regarding FH taking.

METHODS

The Theoretical Domains Framework (TDF) was used to develop a comprehensive interview scheme. Semi-structured interviews were conducted with community pediatricians. Interviews were audio-recorded, transcribed, and analyzed using a thematic approach and the constant comparison method.

RESULTS

Eleven pediatricians were interviewed. FH was found to be a firmly embedded, complex, and important aspect of pediatric practice. Participants described FH as part of regular holistic care. FH and social history were linked and often appeared to be part of the same concept to participants. FH was used for a range of purposes. In addition to risk assessment, FH information helped clarify diagnosis and select medication, tailor overall patient management based on family circumstance, and provide psychosocial support for parents. Participants expressed confidence in their FH skills and reported tailoring their approach with experience. Most were not concerned about formal evidence for FH and would not change their practice except for "good reason."

CONCLUSIONS

The use of the TDF helped ensure a comprehensive approach to FH taking in pediatric practice. The findings suggest that FH taking in this setting is a complex activity, embedded in routine care. Efforts to make FH taking more systematic may founder if they fail to take into account pediatricians' attitudes, perspectives, and practices.

摘要

背景

家族史(FH)是儿科临床中许多疾病的一个风险因素。在获取家族史方面没有护理标准,且仅有少数关于当前实践的已发表研究。

目的

深入探究儿科医生在获取家族史方面的认知、态度、信念和实践。

方法

采用理论领域框架(TDF)制定了一个全面的访谈方案。对社区儿科医生进行了半结构化访谈。访谈进行了录音、转录,并采用主题分析法和持续比较法进行分析。

结果

访谈了11名儿科医生。发现家族史是儿科临床中一个根深蒂固、复杂且重要的方面。参与者将家族史描述为常规整体护理的一部分。家族史与社会史相互关联,对参与者来说常常似乎是同一概念的一部分。家族史有多种用途。除了风险评估外,家族史信息有助于明确诊断和选择药物,根据家庭情况调整患者的整体管理,并为家长提供心理社会支持。参与者对自己获取家族史的技能表示有信心,并报告随着经验积累调整自己的方法。大多数人不关心获取家族史的正式证据,除非有“充分理由”否则不会改变自己的做法。

结论

理论领域框架的使用有助于确保在儿科临床中全面获取家族史。研究结果表明,在这种情况下获取家族史是一项复杂的活动,融入了日常护理中。如果在使获取家族史更具系统性的努力中没有考虑到儿科医生的态度、观点和实践,可能会失败。

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