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成人特应性皮炎的心理社会影响:定性研究。

Psychosocial Impact of Atopic Dermatitis in Adults: A Qualitative Study.

机构信息

Servicio de Dermatología, Hospital Royo Villanova, Zaragoza, España; Grupo Aragonés de Investigación en Psicodermatología (GAI+PD), Instituto Aragonés de Ciencias de la Salud (IACS), Zaragoza, España.

Grupo Aragonés de Investigación en Psicodermatología (GAI+PD), Instituto Aragonés de Ciencias de la Salud (IACS), Zaragoza, España.

出版信息

Actas Dermosifiliogr (Engl Ed). 2020 Jul-Aug;111(6):513-517. doi: 10.1016/j.ad.2019.03.018. Epub 2020 May 13.

Abstract

BACKGROUND AND OBJECTIVE

Atopic dermatitis affects a patient's quality of life in many ways. Analysis of the effects of this disease on the lives of adult patients is therefore important for the purpose of better defining their care needs.

PATIENTS AND METHODS

We interviewed 14 adult patients with atopic dermatitis in this qualitative study. The interviews were semistructured according to a simple outline to allow for completeness and flexibility and afford greater depth and richness of information.

RESULTS

Atopic dermatitis affected the patients' lives in 6 spheres of activity: economic, occupational, personal, psychosocial, clinical, and relational. A clear finding was that the disease has a considerable psychosocial effect on adult patients, altering their interpersonal relationships and leading to rejection, stigmatization, and social isolation. It limits the patient in various spheres of life and in activities of daily living, causing sleep alterations among other effects. The patients were very concerned about appearance, the itch-scratch cycle, poor understanding and lack of awareness of their disease, the absence of a definitive treatment, and the adverse effects of some treatments.

CONCLUSIONS

The quality of life of adults with atopic dermatitis is negatively affected. This disease requires a professional, holistic, multidisciplinary management approach that attempts to mitigate the adverse effects.

摘要

背景与目的

特应性皮炎会在多个方面影响患者的生活质量。因此,分析该疾病对成年患者生活的影响,对于更好地确定其护理需求至关重要。

患者与方法

在这项定性研究中,我们采访了 14 名特应性皮炎成年患者。访谈采用半结构化的方式进行,根据一个简单的大纲,以确保完整性和灵活性,并提供更深入和丰富的信息。

结果

特应性皮炎影响了患者在 6 个活动领域的生活:经济、职业、个人、心理社会、临床和关系。一个明显的发现是,该疾病对成年患者有相当大的心理社会影响,改变了他们的人际关系,导致排斥、污名化和社会孤立。它限制了患者在生活的各个领域和日常生活活动中的活动能力,导致睡眠改变等其他影响。患者非常关注外观、瘙痒-搔抓循环、对疾病的理解和认识不足、缺乏明确的治疗方法以及一些治疗方法的不良反应。

结论

特应性皮炎成年患者的生活质量受到负面影响。这种疾病需要专业、全面、多学科的管理方法,以减轻其不良影响。

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