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[医学领域中关于死亡与临终话题的沟通障碍]

[Barriers to Conversations About Death and Dying in the Medicine].

作者信息

Seifart Carola, Nagelschmidt Katharina, von Blanckenburg Pia

出版信息

Anasthesiol Intensivmed Notfallmed Schmerzther. 2020 May;55(5):334-339. doi: 10.1055/a-1002-8080. Epub 2020 May 20.

Abstract

Conversations about death, dying and the end of life are usually difficult. They can turn out to be both a burden and a challenge for those engaging in these talks. There is evidence that talking early about end-of-life-topics shows positive effects concerning medical and psychological conditions of patients. Open communication addressing these topics can be part of family- and patient-centered talks in an intensive care department, known as a quality indicator of intensive care medicine. Further, these conversations are important and necessary in palliative care for providing a "good death". Nevertheless, these conversations are delayed or do not take place due to communication barriers of doctors, patients and caregivers. Barriers to end of life communication of physicians contain individual, personal or role-specific factors, lack of medical knowledge, including insecurities of prognosis, professional attitudes, clinical routines and the worry of harming patients with these talks. Regarding barriers to communication of patients and their family members, it could be differentiated between emotional, cognitive, relationship-related and external factors. It could be valuable to recognize these barriers to increase the possibility of end of life conversations in the near future.In daily medical routine end of life topics should be addressed early and actively. Especially the readiness for these conversations should be tested repeatedly and talks should be offered regularly. Critical events such as relapse, modulating therapy concepts and knowledge of unrealistic treatment expectations should be regarded as prompts to offer conversations about dying and end-of-life care actively.

摘要

关于死亡、临终和生命终结的对话通常很困难。对于参与这些谈话的人来说,它们可能会成为一种负担和挑战。有证据表明,尽早谈论临终话题对患者的医疗和心理状况有积极影响。在重症监护病房,围绕这些话题展开的开放沟通可以成为以家庭和患者为中心的谈话的一部分,这是重症医学的一个质量指标。此外,这些对话在姑息治疗中对于实现“善终”很重要且必要。然而,由于医生、患者和护理人员之间的沟通障碍,这些对话会被推迟或无法进行。医生在临终沟通方面的障碍包括个人、个人或角色特定因素、缺乏医学知识,包括对预后的不确定、专业态度、临床常规以及担心因这些谈话伤害患者。关于患者及其家庭成员的沟通障碍,可以分为情感、认知、关系相关和外部因素。认识到这些障碍对于在不久的将来增加临终对话的可能性可能很有价值。在日常医疗工作中,应尽早且积极地讨论临终话题。特别是应该反复测试进行这些对话的准备情况,并定期提供谈话机会。诸如复发、调整治疗方案以及了解不切实际的治疗期望等关键事件应被视为积极提供关于死亡和临终关怀对话的契机。

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