支持脑卒中后失语症患者生活得更好:爱尔兰言语治疗师的横断面调查。
Supporting people with post-stroke aphasia to live well: A cross-sectional survey of Speech & Language Therapists in Ireland.
机构信息
School of Allied Health, Faculty of Education and Health Sciences, University of Limerick, Limerick, Republic of Ireland.
出版信息
Health Soc Care Community. 2020 Nov;28(6):2105-2116. doi: 10.1111/hsc.13021. Epub 2020 May 27.
Living well with post-stroke aphasia is supported by responsive, collaborative heath and related services, aphasia information and training for people with aphasia (PWA) and their social networks, and opportunities to contribute and participate autonomously in their communities. Several international surveys indicate shortcomings in the provision of long-term support and, in Ireland, while there is a lack of data around service provision for PWA, there is evidence that post-acute stroke services are fragmented and under-resourced. The aim of this study was to survey Speech & Language Therapists (SLTs), due to their unique role in aphasia management, to understand what SLT and related support services and aphasia information and training are currently available to support living well with aphasia in Ireland. We developed and piloted a self-administered, web-based cross-sectional survey with questions informed by a systematic review and qualitative evidence synthesis around living well with aphasia, and with input from a Public and Patient Involvement aphasia advisory group. Data from 95 SLTs working with PWA were analysed using descriptive statistics. Although SLT was generally available for PWA, the results highlight access barriers and evidence-practice gaps in terms of the amount, intensity and timing of SLT to be maximally effective and there was a lack of PWA input into service design and evaluation. Access to other relevant supports such as mental health services was inconsistent and there was a lack of community support for families. There were shortcomings in access to aphasia information/training for PWA, families, friends and other healthcare professionals. There is a need for a coordinated and standardised approach to supporting PWA across Ireland. This study addresses an evidence gap around the provision of stroke services for PWA and is part of a larger project aiming to produce recommendations for improving person-centred support to facilitate living well with aphasia.
通过响应式、协作式的健康和相关服务、失语症患者(PWA)及其社交网络的失语症信息和培训,以及自主为社区做贡献和参与的机会,可以支持 PWA 良好生活。几项国际调查表明,长期支持服务存在不足,而在爱尔兰,虽然缺乏针对 PWA 服务提供的数据,但有证据表明,急性后期脑卒中服务分散且资源不足。本研究旨在调查言语治疗师(SLTs),因为他们在失语症管理方面具有独特的作用,以了解爱尔兰目前有哪些 SLT 和相关支持服务、失语症信息和培训可用于支持 PWA 良好生活。我们根据围绕良好生活的失语症的系统评价和定性证据综合,以及来自公众和患者参与的失语症咨询小组的意见,开发并试点了一个自我管理的、基于网络的横断面调查,该调查包含问题。分析了 95 名与 PWA 合作的 SLT 的数据,使用描述性统计。尽管一般都可以为 PWA 提供 SLT,但结果突出了在 SLT 的数量、强度和时间方面的准入障碍和证据-实践差距,以实现最大效果,而且在服务设计和评估方面缺乏 PWA 的投入。获得其他相关支持,如心理健康服务的机会不一致,并且家庭缺乏社区支持。PWA、家属、朋友和其他医疗保健专业人员获取失语症信息/培训的机会有限。爱尔兰需要协调和标准化的方法来支持 PWA。这项研究解决了围绕为 PWA 提供脑卒中服务的证据差距问题,是旨在提出改善以患者为中心的支持以促进失语症患者良好生活的建议的更大项目的一部分。