Hahn Elizabeth A, Boileau Nicholas R, Hanks Robin A, Sander Angelle M, Miner Jennifer A, Carlozzi Noelle E
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine.
Center for Clinical Outcomes Development and Application (CODA), Department of Physical Medicine and Rehabilitation, University of Michigan.
Rehabil Psychol. 2020 May 28. doi: 10.1037/rep0000330.
The purpose of this study is to estimate the occurrence of low health literacy among caregivers of people with traumatic brain injury (TBI), and to evaluate associations of health literacy with caregiver health-related quality of life (HRQOL) and perceptions of the caregiving role. Research The TBI-CareQOL measurement system assesses important self-reported outcomes for caregivers of civilians or service members/veterans (SMVs) with TBI. The validation phase included the Health Literacy Assessment Using Talking Touchscreen Technology (Health LiTT) measure. Multivariable regression evaluated the impact of low health literacy on generic and TBI-specific HRQOL and appraisals of the caregiving role, adjusted for caregiver gender, race/ethnicity and education, and the functional status of the TBI care recipient. Among 131 caregivers, 28 (21%) had low health literacy. Compared with the high health literacy group, the group with low health literacy had fewer women, more racial/ethnic minorities, and lower education (all < .05). The low health literacy group reported more subjective caregiving burden, less satisfaction with their relationship with the TBI recipient, less caregiving mastery, and poorer physical health (all < .05). There were no differences between health literacy groups in caregiving ideology, caregiver-specific HRQOL or general mental health. A better understanding of the links between health literacy and caregiver HRQOL and the caregiving role can help identify strategies to meet the needs of this underserved population. Tailored interventions for caregivers with low health literacy could improve outcomes for both the caregiver and the care recipient. (PsycInfo Database Record (c) 2020 APA, all rights reserved).
本研究的目的是估计创伤性脑损伤（TBI）患者照料者中健康素养较低的发生率，并评估健康素养与照料者健康相关生活质量（HRQOL）以及对照料角色认知之间的关联。研究：TBI - CareQOL测量系统评估了平民或患有TBI的军人/退伍军人（SMV）照料者自我报告的重要结果。验证阶段包括使用语音触摸屏技术进行的健康素养评估（Health LiTT）测量。多变量回归评估了低健康素养对一般和TBI特定的HRQOL以及对照料角色评价的影响，并对照料者的性别、种族/族裔和教育程度以及TBI受照料者的功能状态进行了调整。在131名照料者中，28名（21%）健康素养较低。与高健康素养组相比，低健康素养组女性较少，种族/族裔少数群体较多，教育程度较低（均P <.05）。低健康素养组报告的主观照料负担更重，对与TBI患者关系的满意度更低，照料技能掌握程度更低，身体健康状况更差（均P <.05）。健康素养组在照料观念、照料者特定的HRQOL或一般心理健康方面没有差异。更好地理解健康素养与照料者HRQOL以及照料角色之间的联系，有助于确定满足这一服务不足人群需求的策略。针对低健康素养照料者的量身定制干预措施可以改善照料者和受照料者的结局。（PsycInfo数据库记录（c）2020美国心理学会，保留所有权利）
