David A, Gerardin P, Payet A
Service de pneumologie, groupe hospitalier Sud Réunion, CHU de Réunion, 410, 97, avenue du Président-Mitterand, Saint-Pierre, Réunion.
Centre d'investigation clinique (Inserm CIC1410), épidémiologie clinique, groupe hospitalier Sud Réunion, CHU de Réunion, Saint-Pierre, Réunion.
Rev Mal Respir. 2020 Jun;37(6):451-461. doi: 10.1016/j.rmr.2020.04.011. Epub 2020 Jun 3.
Numerous studies about poor communication and altered quality of life of patients with chronic obstuctive pulmonary disease (COPD) lead to the conclusion that overall palliative management of COPD remains to be improved. The aim of this study was to describe pulmonologists' practice of palliative care for COPD patients in order to identify obstacles to it.
A survey was sent to all pulmonologists whose email appeared in the 2017 French-language Respiratory Medicine Society's directory.
A total of 294 responses were obtained, among which 287 were analysed. Overall, 81.6% of the pulmonologists said that they identify a distinct palliative phase from "sometimes to often" in the care of COPD patients. When not identified, the most common reason given (68.8%) was the difficulty of defining when to start palliative care. Aspects of the palliative approach, which were considered the most problematic for pulmonologists, were the discussion of end of life care, and the impression that COPD patients have a low demand for information. 31% of pulmonologists reported that they gathered information about patients' wishes to undergo resuscitation and endotracheal intubation in 61 % to 100% of patients who they judged to have the most severe disease.
Uncertainty as to when to begin a palliative approach for COPD patients and perceptions around communication in chronic diseases appear to be the main obstacles to a palliative approach.
众多关于慢性阻塞性肺疾病(COPD)患者沟通不良及生活质量改变的研究得出结论,COPD的整体姑息治疗仍有待改善。本研究旨在描述肺科医生对COPD患者的姑息治疗实践,以确定其中的障碍。
向所有电子邮件出现在2017年法语呼吸医学会名录中的肺科医生发送了一份调查问卷。
共获得294份回复,其中287份进行了分析。总体而言,81.6%的肺科医生表示,他们在COPD患者的护理中“有时至经常”能识别出一个明确的姑息治疗阶段。当未识别出时,给出的最常见原因(68.8%)是难以确定何时开始姑息治疗。对于肺科医生来说,姑息治疗方法中最成问题的方面是临终护理的讨论,以及认为COPD患者对信息需求较低的印象。31%的肺科医生报告称,他们在61%至100%他们判断为病情最严重的患者中收集了有关患者接受心肺复苏和气管插管意愿的信息。
对于何时开始对COPD患者采取姑息治疗方法的不确定性以及对慢性病沟通的认知似乎是姑息治疗方法的主要障碍。