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父母对轮椅在其行动不便子女生活中作用的体验:迪拜的一项定性研究

Parental experiences on the role of wheelchairs in the lives of their children with mobility impairments: a qualitative exploration in Dubai.

作者信息

Liebenberg Anjanet, Geiger Martha, Visagie Surona

机构信息

Department of Global Health, Centre for Rehabilitation studies, Stellenbosch University, Stellenbosch, South Africa.

出版信息

Disabil Rehabil Assist Technol. 2022 Apr;17(3):310-317. doi: 10.1080/17483107.2020.1782488. Epub 2020 Jun 24.

DOI:10.1080/17483107.2020.1782488
PMID:32579482
Abstract

PURPOSE

To explore parental experiences on the role of wheelchairs in the lives of their children with mobility impairments in Dubai.

METHODS

Seven participants were recruited through purposive sampling and their experiences were explored by conducting semi-structured interviews. The audio recordings were transcribed and thematically analysed.

RESULTS

The findings showed that wheelchairs were an essential part of the children`s lives, which enabled their participation in the home, the school and the community. Procurement processes were difficult owing to a lack of assessment and prescription processes as well as insurance companies providing little assistance with payment. The participants described Dubai as a wheelchair friendly city and two overarching themes emerged; firstly, , and, secondly,

CONCLUSION

The study is the first of its kind in Dubai and indicated that the wheelchair played an important role in the children's lives and allowed participation in life roles that brought joy and fulfilment. Without wheelchairs, children would be isolated and frustrated. However, some of the participants were not satisfied with their child's current wheelchair and felt the chair was not appropriate. Recommendations to specific stakeholders included: the development of policies to guide wheelchair service provision by government. In addition, insurance providers could collaborate with the government to adhere to the policy to ensure healthy lives and promote well-being for all.IMPLICATIONS FOR REHABILITATIONThe wheelchair provided children the mobility to participate in life roles instead of being isolated.Not all children had appropriate wheelchairs.Service providers and medical insurance did not give sufficient support during wheelchair selection and procurement.

摘要

目的

探讨在迪拜,父母对于轮椅在其行动不便子女生活中所起作用的体验。

方法

通过目的抽样招募了7名参与者,并通过进行半结构化访谈来探究他们的经历。对录音进行了转录并进行了主题分析。

结果

研究结果表明,轮椅是孩子们生活中必不可少的一部分,使他们能够参与家庭、学校和社区活动。由于缺乏评估和处方流程,以及保险公司在支付方面提供的帮助很少,采购过程很困难。参与者将迪拜描述为一个对轮椅使用者友好的城市,并出现了两个总体主题;首先, ,其次,

结论

该研究是迪拜同类研究中的首例,表明轮椅在孩子们的生活中发挥了重要作用,并使他们能够参与带来快乐和满足感的生活角色。没有轮椅,孩子们会被孤立并感到沮丧。然而,一些参与者对其孩子目前使用的轮椅不满意,觉得椅子不合适。针对特定利益相关者的建议包括:政府制定政策以指导轮椅服务的提供。此外,保险提供商可以与政府合作以遵守该政策,确保所有人都能拥有健康的生活并促进福祉。对康复的启示轮椅为孩子们提供了参与生活角色的行动能力,而不是使他们被孤立。并非所有孩子都有合适的轮椅。服务提供商和医疗保险在轮椅选择和采购过程中没有提供足够的支持。

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