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Racial/Ethnic Disparities in Longitudinal Trajectories of Community Integration After Burn Injury.烧伤后社区融合纵向轨迹中的种族/民族差异。
Am J Phys Med Rehabil. 2020 Jul;99(7):602-607. doi: 10.1097/PHM.0000000000001378.
2
Contemporary Burn Survival.当代烧伤救治。
J Am Coll Surg. 2018 Apr;226(4):453-463. doi: 10.1016/j.jamcollsurg.2017.12.045. Epub 2018 Mar 9.
3
National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System: Review of Program and Database.国家残疾、独立生活和康复研究烧伤模型系统:计划和数据库回顾。
Arch Phys Med Rehabil. 2020 Jan;101(1S):S5-S15. doi: 10.1016/j.apmr.2017.09.109. Epub 2017 Oct 5.
4
Patients' perspectives on quality of life after burn.患者对烧伤后生活质量的看法。
Burns. 2017 Jun;43(4):747-756. doi: 10.1016/j.burns.2016.11.016. Epub 2017 Jan 6.
5
Improved Survival of Patients With Extensive Burns: Trends in Patient Characteristics and Mortality Among Burn Patients in a Tertiary Care Burn Facility, 2004-2013.大面积烧伤患者生存率的提高:2004 - 2013年三级烧伤治疗机构中烧伤患者的特征及死亡率趋势
J Burn Care Res. 2017 May/Jun;38(3):187-193. doi: 10.1097/BCR.0000000000000456.
6
Hypertrophic scarring: the greatest unmet challenge after burn injury.肥厚性瘢痕形成:烧伤后最大的未解决挑战。
Lancet. 2016 Oct 1;388(10052):1427-1436. doi: 10.1016/S0140-6736(16)31406-4.
7
Validation of the Community Integration Questionnaire in the adult burn injury population.社区融合问卷在成年烧伤人群中的效度验证。
Qual Life Res. 2015 Nov;24(11):2651-5. doi: 10.1007/s11136-015-0997-4. Epub 2015 May 19.
8
Impact of facial burns: relationship between depressive symptoms, self-esteem and scar severity.面部烧伤的影响:抑郁症状、自尊与瘢痕严重程度之间的关系
Gen Hosp Psychiatry. 2014 May-Jun;36(3):271-6. doi: 10.1016/j.genhosppsych.2013.12.001. Epub 2013 Dec 10.
9
Self- and parent-perceived stigmatisation in children and adolescents with congenital or acquired facial differences.儿童和青少年先天性或获得性面部差异的自我和家长感知的污名化。
J Plast Reconstr Aesthet Surg. 2012 Dec;65(12):1664-70. doi: 10.1016/j.bjps.2012.06.004. Epub 2012 Jul 6.
10
Neuro-QOL: brief measures of health-related quality of life for clinical research in neurology.神经生活质量量表(Neuro-QOL):用于神经病学临床研究的健康相关生活质量的简短测量工具。
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社会因素和损伤特征与烧伤幸存者感知到的损伤耻辱感的发展有关。

Social factors and injury characteristics associated with the development of perceived injury stigma among burn survivors.

机构信息

Department of Surgery, University of Texas Medical Branch, 301 University Street, Galveston, TX 77555, USA.

Department of Surgery and Perioperative Care, Dell Medical School at the University of Texas at Austin, 1501 Red River Street, Austin, TX 78712, USA.

出版信息

Burns. 2021 May;47(3):692-697. doi: 10.1016/j.burns.2020.07.022. Epub 2020 Aug 4.

DOI:10.1016/j.burns.2020.07.022
PMID:32830004
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7858690/
Abstract

Improvement in burn survival has shifted the focus of burn care from beyond merely preserving life to improving the quality of life for burn survivors. Healthy psychosocial function is critical to the development of sustained elevations in quality of life after injury, with social and community integration serving a crucial role. Accordingly, the experience of social stigma could pose a significant hindrance to the process of recovery. In this retrospective analysis of patient-reported outcomes following burn injury as captured in the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Burn Model Systems database, we examined the patient and injury characteristics associated with the subsequent experience of social stigma by burn survivors. Using multivariable regression analysis, we found that facial burns and amputations are independent risk factors for experiencing social stigma, while male sex and increased community integration were protective. Taken together, these findings suggest a role for targeted counseling for patients who sustain facial burns and/or amputations, as well as the continued investment in burn-survivor outreach programs aimed at improving social support for survivors.

摘要

烧伤存活率的提高使得烧伤护理的重点从仅仅挽救生命转移到提高烧伤幸存者的生活质量。健康的社会心理功能对于受伤后生活质量的持续提高至关重要,社会和社区融合起着关键作用。因此,社会耻辱感的体验可能会对康复过程造成重大障碍。在对国家残疾、独立生活和康复研究研究所(NIDILRR)烧伤模型系统数据库中烧伤后患者报告的结果进行回顾性分析中,我们研究了与烧伤幸存者随后经历社会耻辱感相关的患者和损伤特征。使用多变量回归分析,我们发现面部烧伤和截肢是经历社会耻辱感的独立危险因素,而男性和增加的社区融合则具有保护作用。综上所述,这些发现表明需要对遭受面部烧伤和/或截肢的患者进行有针对性的咨询,并继续投资烧伤幸存者外展计划,以改善对幸存者的社会支持。