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社会因素和损伤特征与烧伤幸存者感知到的损伤耻辱感的发展有关。

Social factors and injury characteristics associated with the development of perceived injury stigma among burn survivors.

机构信息

Department of Surgery, University of Texas Medical Branch, 301 University Street, Galveston, TX 77555, USA.

Department of Surgery and Perioperative Care, Dell Medical School at the University of Texas at Austin, 1501 Red River Street, Austin, TX 78712, USA.

出版信息

Burns. 2021 May;47(3):692-697. doi: 10.1016/j.burns.2020.07.022. Epub 2020 Aug 4.

Abstract

Improvement in burn survival has shifted the focus of burn care from beyond merely preserving life to improving the quality of life for burn survivors. Healthy psychosocial function is critical to the development of sustained elevations in quality of life after injury, with social and community integration serving a crucial role. Accordingly, the experience of social stigma could pose a significant hindrance to the process of recovery. In this retrospective analysis of patient-reported outcomes following burn injury as captured in the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Burn Model Systems database, we examined the patient and injury characteristics associated with the subsequent experience of social stigma by burn survivors. Using multivariable regression analysis, we found that facial burns and amputations are independent risk factors for experiencing social stigma, while male sex and increased community integration were protective. Taken together, these findings suggest a role for targeted counseling for patients who sustain facial burns and/or amputations, as well as the continued investment in burn-survivor outreach programs aimed at improving social support for survivors.

摘要

烧伤存活率的提高使得烧伤护理的重点从仅仅挽救生命转移到提高烧伤幸存者的生活质量。健康的社会心理功能对于受伤后生活质量的持续提高至关重要,社会和社区融合起着关键作用。因此,社会耻辱感的体验可能会对康复过程造成重大障碍。在对国家残疾、独立生活和康复研究研究所(NIDILRR)烧伤模型系统数据库中烧伤后患者报告的结果进行回顾性分析中,我们研究了与烧伤幸存者随后经历社会耻辱感相关的患者和损伤特征。使用多变量回归分析,我们发现面部烧伤和截肢是经历社会耻辱感的独立危险因素,而男性和增加的社区融合则具有保护作用。综上所述,这些发现表明需要对遭受面部烧伤和/或截肢的患者进行有针对性的咨询,并继续投资烧伤幸存者外展计划,以改善对幸存者的社会支持。

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