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生命尽头的尊严感:通过家庭相册反思一生的价值观

The Sense of Dignity at the End of Life: Reflections on Lifetime Values through the Family Photo Album.

作者信息

Testoni Ines, Baroni Vera, Iacona Erika, Zamperini Adriano, Keisari Shoshi, Ronconi Lucia, Grassi Luigi

机构信息

Department of Philosophy, Sociology, Pedagogy and Applied Psychology (FISPPA), University of Padova, 35131 Padova, Italy.

The Faculty of Social Welfare and Health Sciences, University of Haifa, Haifa 5560249, Israel.

出版信息

Behav Sci (Basel). 2020 Nov 23;10(11):177. doi: 10.3390/bs10110177.

Abstract

This study focuses on the dimensions of dignity, linking Chochinov's Dignity Therapy to Schwartz's Theory of Values. The use of family photo albums has enriched the application of dignity therapy. Seven terminal patients in home-based palliative care participated in the therapeutic intervention. To measure the effects of the intervention, we administered the Edmonton Symptom Assessment Scale and the Patient Dignity Inventory, then, at the end of the meetings, collected the opinions of participants, available nurses, and relatives who attended the sessions. The resulting generativity documents were then analyzed through thematic analysis, which revealed three main themes linked to both fundamental values and the dimensions of dignity: The relationship between continuity of self and myriad values in the context of family relationships; personal dignity as characterized by the values of personal success, hope, and wisdom; and hope and generativity. The fourth theme reflected the participants' final judgements on the intervention, which were highly positive and greatly encouraged further use of photographs in similar therapeutic interventions. The assessment protocol highlighted a significant decrease in tiredness amongst the participants and a trend towards a significant decrease in drowsiness after the intervention.

摘要

本研究聚焦于尊严的维度,将乔奇诺夫的尊严疗法与施瓦茨的价值观理论联系起来。家庭相册的使用丰富了尊严疗法的应用。七名居家姑息治疗的晚期患者参与了治疗干预。为了衡量干预效果,我们使用了埃德蒙顿症状评估量表和患者尊严量表,然后在会议结束时,收集了参与患者、在场护士以及参加会议的亲属的意见。随后通过主题分析对生成性文档进行分析,揭示了与基本价值观和尊严维度相关的三个主要主题:家庭关系背景下自我连续性与众多价值观之间的关系;以个人成功、希望和智慧价值观为特征的个人尊严;以及希望和生成性。第四个主题反映了参与者对干预的最终评价,这些评价非常积极,并极大地鼓励在类似治疗干预中进一步使用照片。评估方案突出显示,参与者的疲劳感显著降低,干预后嗜睡也有显著下降的趋势。

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