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实现有意义且以患者为中心的糖尿病咨询是糖尿病专家和糖尿病患者共同的责任:一项来自 1 型糖尿病患者的定性研究。

Achieving a useful and person-centred diabetes consultation is a shared responsibility between diabetologists and people with diabetes: a qualitative study of perspectives from people with type 1 diabetes.

机构信息

Steno Diabetes Centre Copenhagen, Gentofte, Denmark.

出版信息

Diabet Med. 2021 Jun;38(6):e14382. doi: 10.1111/dme.14382. Epub 2020 Sep 23.

Abstract

AIMS

To explore perceptions of useful routine consultations with diabetologists from the perspective of adults with type 1 diabetes, including preferences for discussing psychosocial issues.

METHODS

We conducted semi-structured interviews in 2018/2019 with 33 people with type 1 diabetes (age 22-75 years, 20 men and 13 women, median diabetes duration 25 years) recruited from two diabetes clinics in the capital region of Denmark. Interviews were audio recorded, transcribed verbatim and analysed using thematic text condensation.

RESULTS

Achieving a useful consultation was perceived as a shared responsibility between people with diabetes and diabetologists. Participants' perspectives of what constitutes a useful consultation and expectations for both consultation and diabetologist varied in relation to perceptions of (1) the interaction between the person with diabetes and diabetologist, including being prepared, being honest, experiencing good rapport and preferring a partnership with the diabetologist or 'keeping it clinical' and (2) the diabetologist's approach to diabetes care, including providing up-to-date knowledge and listening and showing understanding.

CONCLUSIONS

Both content and style of diabetes consultations need to be adapted to the individual person with type 1 diabetes. People with diabetes have an important role in expressing their needs and preferences related to both content and style. Diabetologists need to be aware of and attentive to the many individual needs and expectations among people with diabetes, including the desire and need to discuss psychosocial issues. Dialogue tools for preparation and in consultations may enable people with diabetes to voice their needs and expectations and diabetologists to juggle these diversities.

摘要

目的

从 1 型糖尿病患者的角度探讨与糖尿病专家进行常规会诊的看法,包括对讨论心理社会问题的偏好。

方法

我们于 2018/2019 年在丹麦首都地区的两家糖尿病诊所招募了 33 名 1 型糖尿病患者(年龄 22-75 岁,20 名男性,13 名女性,中位糖尿病病程 25 年)进行半结构式访谈。访谈进行了录音、逐字转录,并使用主题文本浓缩进行分析。

结果

实现有用的会诊被视为糖尿病患者和糖尿病专家的共同责任。参与者对有用会诊的看法以及对咨询和糖尿病专家的期望因以下两方面的看法而有所不同:(1)糖尿病患者与糖尿病专家之间的互动,包括准备、诚实、建立良好的关系以及更倾向于与糖尿病专家建立伙伴关系或“保持专业性”;(2)糖尿病专家的糖尿病护理方法,包括提供最新的知识、倾听和表现出理解。

结论

糖尿病咨询的内容和风格都需要适应每位 1 型糖尿病患者。糖尿病患者在表达他们对内容和风格的需求和偏好方面发挥着重要作用。糖尿病专家需要意识到并关注糖尿病患者的许多个体需求和期望,包括讨论心理社会问题的愿望和需求。准备和咨询过程中的对话工具可以使糖尿病患者表达他们的需求和期望,使糖尿病专家能够应对这些多样性。

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